Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Modesto, CA

I have been trying since 2016 to not take daily meds for my fibro, but to just treat my flares rather than 365 days of meds. Have really tried to be more natural. But my natural ways just aren't working for flares or really achy and stiff days. they just are not enough! NSAIDS over the many years have me concerned and I just don't take them regularly any longer, but I feel I have no other choice but to resort back to them in a flare, or maybe not a flare, but just a bad day! Lately waking in the… read more

May 18, 2020
 · 
Reactions
A MyFibroTeam Member

I read your story...you mentioned you have other autoimmune diseases. Could they be contributing to the pain? Under the care of Rheumotologist I suppose. I take cbd and tinctures of passionflower and lemon balm, when I awake middle of the night 2x. Before bed, I take Tylenol and magnesium which makes me sleepy, and also singular for asthma allergy. Plus one or two muscle relaxers. I first get into bed with microwave heat pads, after putting Arnicare cream on, as well as a cbd cream on knees, and Emu oil for arthritis on other areas. Magnesium gel on calves for cramping. It’s sounds like a process doesn’t it.Lol! But it worked for me. 🤗🤗🤗

May 18, 2020
A MyFibroTeam Member

For me, I use tiger balm. Seems to work for me.

May 18, 2020
A MyFibroTeam Member

Has anyone tried @ weighed blanket. My kids got me one for Christmas and it really helps me through the night with my leg and arm issues. I do stretches before I get out of bed in the morning. My pain never goes away completely but I have to live with it. I also do pressure point therapy.

May 22, 2020
A MyFibroTeam Member

Cbd oil is supposed to be good and effective for pain fatigue ect I'm thinking of trying it myself as my doctor says I have tried all the strong meds she knows of having bad side effects on me so I'm not taking anything at present! I had a referral from my rheumotolist to go to a pain management clinic but unfortunately with being at a hospital and the pandemic my first appt which I'd been waiting from late last year for was cancelled so goodness knows now when I will get sent another appt! I'm getting very desperate and despondent now so was thinking of trying cbd oil.

May 19, 2020
A MyFibroTeam Member

You sound just like me! Glad to know I’m not alone or going crazy. I’m 67 now and I have tried to take the same approach as you. I do take a high potency(50mg per ml) cbd oil which has helped so much. I have tried so many medicines and had terrible side effects..I take prozac which can interact with so many drugs including NSAIDS. On my “good” days, I take cbd oil, and extra strength tylenol. Sometimes, I have to add a smooth muscle relaxer. I take Klonopin for sleep as needed. I have a heating pad I use a lot. I have woken up with pain. Not fun! It has been a battle, for sure. Most of the time, I manage with this regimen. About 25% of the time, I get severe flares(all over pain, teeth chattering, nausea, and it feels like my ribs are broken) I have done everything I can to avoid narcotics. Two weeks ago I had one and called my doctor and she put me on Nucynta which is an opiod. It worked so well...did not make me drowsy. Had no side effects. Just pain relief...cbd oil makes it work even better. However, I only use this opiod when the pain is really severe..I take 50 mg tablet for the shortest amount of time possible just until my body calms down. Hoping you find what works best for you...

May 20, 2020

Related Questions

View All
A MyFibroTeam Member asked a question 💭
5675 N CR 375 E Pittsboro In 46167

A MyFibroTeam Member asked a question 💭
Maidstone, UK

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In