Connect with others who understand.

sign up log in
About MyFibroTeam
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do People Deal With Other Peoples Opions Who Dont Know Were Hiding Behind A Mask All The Time

How Do People Deal With Other Peoples Opions Who Dont Know Were Hiding Behind A Mask All The Time

A MyFibroTeam Member said:

A truely caring friend asked me what was the fibromyalgia pain like.
Trying to put it in perspective and be descriptive enough so she would understand. I replied:
I have given birth to two children,
had two back surgeries and knee surgery. I have endured chemotherapy and radiation treatments. All this and fibromyalgia is the worst. Not only can the pain hit a 10, it Encompasses the entire body.
The past surgeries had a healing purpose. The chemo and radiation saved my life from cancer. Childbirth was a joyful time.
However, fibromyalgia has no purpose, no cure, no sustaining treatment, and no exit.
I looked over at my friend and she had tears running down her face. She got it.

posted 6 months ago
A MyFibroTeam Member said:

No one gets it till they get it! Most of them just think we're lazy. I try to ignore but sometimes its hard to do that

posted 6 months ago
A MyFibroTeam Member said:

Thabk you for posting. I think your right lol have a great day

posted 6 months ago
A MyFibroTeam Member said:

@A MyFibroTeam Member

For me I am very much a loner and don't tend to speak to people often, guess I have a great distrust of people.

Most People have no idea of how Fibromyalgia feels and for many of us sadly it's Spouses or significant other or Family Members that have little or no understanding of Fibromyalgia.

I always tell them to look it up on Dr Google and check out the Websites regarding Fibromyalgia.

Unfortunately even many Doctors and Rheumatologist don't always understand, either thinking it is all in our heads that we are imagining the symptoms.

Living with Fibromyalgia is very difficult but it is even harder when people don't realise the excruciating pain that you endure everyday of our lives, many symptoms getting worse over time.

Wishing you a Less Pain Free Day many Blessings Stay Safe and Sound.

๐Ÿ’–๐ŸŒŸ๐Ÿ’–๐ŸŒŸ๐Ÿ’–๐ŸŒŸ๐Ÿ’–๐ŸŒŸ๐Ÿ’–๐Ÿค— XXX

posted 6 months ago
A MyFibroTeam Member said:

Thats so true it does seem to be the closer they are the less they want to reserach lol. Im also finding myself more and more by myself its easier then exsplaning my every move or thought lol

Have a great day x

posted 6 months ago
Browse more questions and answers
Continue with Facebook
Sign up with your email
Already a Member? Log in