Hi @A MyFibroTeam Member. So sorry you’re experiencing this, especially horrible at your young age. There is definitely something going on and don’t let anyone tell you otherwise. You should get tested for Lyme disease as many of the symptoms you describe could be that and it would be good to rule it out (I’m not a doctor but I’ve been living with this for 9 years and have explored many things). The other blood tests to have are the tests for viruses such as Epstein Barr (EBV), parvoviruses and Herpes viruses, all are possibly linked to CFS/ME which can cause HORRIBLE fatigue. EBV in particular can reactivate in your system so that’s where this can be determined through bloodwork. There’s also been studies indicating a possible link between EBV and numerous illness such as MS, Lupus, CFS/ME and FMS. It’s not been proven definitively but I can tell you from my own experience since I have reactivated EBV and parvovirus19. I firmly believe this is the cause of my FMS. My doctor has referred me to an environmental health clinic specializing in these chronic illnesses and she said that EBV and parvovirus both may play a role in CFS/ME, which I have not been diagnosed with (thus the reason for the referral to the clinic). Don’t give up or let anyone tell you “it’s in your head.” There is no cure for Fibromyalgia syndrome or CFS/ME and most manage the symptoms with a combination of medication, physical treatments, gentle exercises, rest and pacing and a good clean diet. I have found a clean diet with lower carbs tends to help me, especially with the GI symptoms and brain fog. Do some research online. There’s lots of info out there. Insist your doc refer you to someone who specializes in these conditions since many GPs are rather ignorant about them. I wish you all the best. I hope you find relief. Sending gentle hugs. 🤗

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A MyFibro...

Know that if you really have fibromyalgia, talking about it is really helpful. This forum helped me cope with my symptoms and a psychologist help me with anxiety and everything. You shouldn't stay alone in this.

Hi,
It looks like fibromyalgia but not everyone feel the same things. The only thing I can tell you is that you should see a doctor who is specialised like rheumatologist because a lot of diseases can mimic fibromyalgia and it could get worse.
I cannot speak for everyone but it's been two years since it started for me and it didn't really get worse. I'm in more pain now but it tends to stay that way.
Seeing a doctor could help you because if you are willing to be can prescribe medications to help ease the pain. I refused to take anything but if it can help you it's good.
I hope it will help you a little and courage.
Hugs to you.

When I first started really dealing with my fibro, rather than letting it win, I found that a multivitamin every morning with breakfast eased some of the problems. Then I graduated to individual supplements. Certain ones will help with certain problems. I have found that 1mg of folic acid and 500 mg of magnesium half hour before bed stopped the tingling and jerking of my legs. I use the same dose magnesium 3 times a day, plus cucumin pills twice a day for pain management. I also use CBD oil at night to stop my leg muscles from knotting. My dr put me on Lyrica which helps, but I gained 50 lbs on it, so now I am trying to lose weight. Unfortunately, it is a trial and error to find out what will work for yourself. Everybody is different. Never give up and everyone on this site is here for you.

I find that some docs will start to think you’re a hypochondriac and shrug you off. You know your body best and the difference between when you feel “off” or like something is going terribly wrong. And the issues you are describing are horrifying. I would keep going to new doctors until you find one who listens to you. Find one who will help you regain some kind of quality of life.