Connect with others who understand.

sign up log in
About MyFibroTeam
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Help Understanding My Condition

Help Understanding My Condition

I am in process of seeing a specialist for fibromyalgia. I've had 2 appointments and had tender point tests etc and blood tests, so far to show no other illnesses so doctor says fibromyalgia. I get stiffness, widespread pains, pins and needles, numbness, aches and pains and all the rest. Fatigue, sleep issues and anxiety. Last blood check up in January led to discovery of my rheumatoid factor being borderline. Wasn't sure what this meant to be honest but I have to go every 6 months for blood… read more

A MyFibroTeam Member said:

I was a Regist Nurse, had Fibro for 50yrs. I think you might need to be assessed by an Immunologist, to me the pins & needles & numbness might need investiagtion General Dr's don't know which tests to do.
Ask this Fibro Dr if he has tested you for any other Auto-immune Disorders.

All your symptoms sound like Fibro - All our nerves are always in a "jangle" i.e. they have a too much stimulation, from your own body, no -one knows why, yet, the muscles spasm when in fixed posture, that's the burning pain you feel.
Do your fingers go white/ blue in cold ? do you have joint swelling ?
The cracking you describe is probably hypermobility of joints, the old "double jointed " which I have had all my life- could never be a burglar I used to laugh.
I think hyperfexability/ hypermobility of joints is assoc with Fibro - have to look it up.
Avoid fixed postures, & over -reaching, over-stretching etc. as we are more susceptible to joint dislocation.
I think you could do with some treament for nerve irritation like cymbalata/ Gabapentin, it will help with sleep, anxiety & fatigue. You might also need something extra for anxiety.
Good luck & lets know how you get on pls

posted about 2 years ago
A MyFibroTeam Member said:

Sounds like you have arthritis all over your body. That being said, I would have the burning in my arm checked out. I had the same thing 10 or more years ago and let it go because it mostly hurt at night. I finally had an EMG of my neck and both of my hands are going or have gone numb. I had surgery, but it was only partially successful. Please do not wait like I did. Not only the complication of surgery but the severe pain with the EMG because I waited too long. God Bless and I just said a prayer for you.

posted about 2 years ago
A MyFibroTeam Member said:

Thank you all for the advice. Ive spoken to my rheumatologist and he says right now he isnt worried about the clicking and popping of joints and mentioned about my rib dislocating and my last results showing scattered ana pattern and 2 antibodies positive but he hadnt found any inflammation but since then the rib dislocated so maybe he is thinking theres inflammation so maybe the infection that showed positive antibodies still remains? No idea. I asked him to elaborate because you know how doctors are, they say half a story and leave you in wonderment

posted about 2 years ago
A MyFibroTeam Member said:

It sounds like you have arthritis and fibromyalgia like me.. so sorry..

posted about 2 years ago
A MyFibroTeam Member said:

Cracking, crunching sound, and popping of joints can be arthritis. I have that in my neck. Doesn’t mean it’s Rheumatoid, it can be normal, age related arthritis. Have to check with the doctor. Good luck!

posted about 2 years ago
Already a Member? Log in