Does anyone out there have persistent pelvic pain that has no explanation besides fibro? Numerous scans have never shown any reason for my right sided pelvic pain. I also have on that side, though, hip, back, leg, and foot pain that is rarely present on the left.
Yes I have everything u listed but all of mine is on the left
Yes I had pelvic pain for about 15 years and it was extremely painful. I had many tests and ultra sounds. No one knew source of pain. Finally a few years ago a GYN dr recommended me to a urologist who upon examining urethra area and doing a cystoscopy determined I had
Interstitial cystitis (IC). He tried a few things that didn’t work so I saw another urologist who specializes in IC. She is awesome and recommended dessert harvest freeze dried capsules and gel for topical use in urethra area. Aloe Vera made a difference.
But bc I have low blood pressure I can’t use aloe Vera every day bc it thins your blood (actually it’s also used for some menstrual conditions).
What’s weird is that I started taking Allegra for post nasal drip and hoarseness and found it helped both IC and Fibro. So I’m taking more of that these days :)
(And yes IC is common to fibro, but not everyone w fibro has).
My issues actually started with severe lower right quadrant abdominal pain. It persisted for two years and doctors kept telling me I was crazy because nothing was showing up on scans. Last winter I left the province for work and landed in the ER, once again, but doctors there paid attention. I ended up having emergency exploratory surgery and they found adhesions wrapped around my organs. They had to disconnect my bowel from my abdominal wall but my girl parts are still tied to my appendix. Now back in my home province I have lost momentum with doctors and nothing is yet explained, but my abdominal pain still persists. At least I can stand up straight now. It could be due to the connective tissue disease they found in my blood, or unseen endometriosis, or something else completely. My other symptoms got more severe after the surgery and now I have mobility issues, and the other fun things that come with this fibro diagnosis.