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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Butterfly Sensations

A MyFibroTeam Member asked a question 💭
London, UK

Does anyone get butterfly sensations in their body? I get it mainly in my legs and feet and I can’t stand it! Makes walking really difficult. Does anyone know what can be taken to reduce these sensations?

January 18, 2020
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Answer Summary

Members connected over the unsettling butterfly and crawling sensations that many experience in their legs, feet, stomach, and chest,... Read more

Members connected over the unsettling butterfly and crawling sensations that many experience in their legs, feet, stomach, and chest, describing feelings ranging from restless legs to creepy crawly spiders that worsen when tired or resting. Several members shared strategies that have helped them manage these symptoms, including gabapentin or Neurontin for nerve-related discomfort, CBD or THC tinctures to stop restless legs within minutes, and skin brushing with moisturizer to soothe dry skin that may contribute to the sensation. A recurring theme was the relief of realizing these odd feelings are related to fibromyalgia rather than something more frightening, with many members expressing gratitude for the validation and shared understanding that they are not alone in these experiences.

A MyFibroTeam Member

I get bad butterflies in my stomach. I get crawling sensations, chills, restless legs, which sounds like something quite calm but it is sooo frustrating. I think there is a medication for it though and it may be neurontin or gabapentin.

January 20, 2020
A MyFibroTeam Member

my CBD/THC tincture will stop my restless legs flat out also the stabbing neuropothy pains i get ,, they come hand in hand ,, it stopped me from having to take gabapentin ,, just sayin a couple drops under my tongue and gone in 15 minutes

January 21, 2020
A MyFibroTeam Member

I used to think I had bugs under my clothes now and then until I realised they were tiny little muscle twitches

January 18, 2020
A MyFibroTeam Member

Yes especially evening when tired and feels like creepy crawly spiders 😳🙆🏼

January 18, 2020
A MyFibroTeam Member

*passed me 🕷
I use brush and then moisturiser
I though maybe skin is also dry
Very useful to read these thank you ‼️💕‼️

January 22, 2020

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