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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Windsor Locks, CT

This EXTREME itching typically comes on close to bedtime (of course!). Topical creams don’t tend to work as the problem seem to be Under the skin. My doctor tried me on an anti-itch medication. But wants to wait for a dermatology appt. which isn’t until Jan. 22!
If I have to wait until then, I’ll probably end up in the psych. ward!

ANYBODY HAVE ANY IDEAS?????

January 4, 2020
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Answer Summary

Members validated the intense nighttime itching described in the original post, with many confirming it as a recognized fibromyalgia symptom... Read more

Members validated the intense nighttime itching described in the original post, with many confirming it as a recognized fibromyalgia symptom caused by activated nerve fibers rather than a skin-level issue. Several members shared practical relief strategies, including daily moisturizing with Sorbolene or Eucerin cream, taking antihistamines like Benadryl, Claritin, or cetirizine, using homemade topical mixtures combining hydrocortisone and Benadryl cream, applying peppermint oil blends, trying oatmeal baths, and using cannabis products for severe cases. A recurring theme was the trial-and-error nature of finding what works, the importance of managing overall fibromyalgia symptoms to reduce itching, and the solidarity of knowing others understand the maddening reality of this often-dismissed symptom.

A MyFibroTeam Member

Some people may also experience pruritus, or severe itching, as a symptom of fibromyalgia. 
Itching may occur in fibromyalgia due to certain nerve fibers being activated and causing an itching sensation. Itching and pain share a common pathway positioned in the spinal cord. ... Initially, scratching relieves the itch, but with constant scratching the skin becomes damaged. 
Just as there is no one cause for fibromyalgia, there isn’t a cause for the unexplained itching. Itching is one possible way your nerves can react to the condition.

It’s also possible that itching could be a side effect of medication you are taking for fibromyalgia, such as pregabalin (Lyrica), duloxetine (Cymbalta), or milnacipran (Savella). Always let your doctor know about any side effects that you experience, even if they are not listed as known side effects. Your doctor may need to adjust your dosage or change your medication.

January 4, 2020
A MyFibroTeam Member

Itching is a low level pain--so think of it as pain from the fibro. I get it too and nothing you take for itching works--but good control over the fibro does.

January 4, 2020
A MyFibroTeam Member

I was diagnosed with fibromyalgia before it was a household word. Thirty years ago, in fact, along with atypical connective tissue disease (autoimmune disorders). I have learned over the years that all the symptoms in the world can be attributed to fibro, but also many, many other issues. It is virtually impossible to tease out what is really part of the fibro "syndrome" of symptoms and what isn't. I know people with severe "idiopathic" itching (no diagnosable cause) who do not have fibro or any other symptoms.

I believe we fibro people should
resist the urge to attribute everything under the sun to it. Some are, some may be, some may not be, some aren't. Until there are cold, hard facts, be cautious about calling every hangnail and headache fibromyalgia. I think it's part of the reason we (and fibro) don't get the respect we (it) deserves. It isn't fair, it isn't fun, but it is the reality at this point in time, sadly... Love to all and maybe 2020 will be a year of breakthroughs.

January 4, 2020
A MyFibroTeam Member

I have had this itching, too. I will get an extremely itchy area but nothing is there! I think it must be the nerves freaking out. It comes and goes at random

January 4, 2020
A MyFibroTeam Member

I use Claritin take the itching away.

January 4, 2020

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