There is a whole lot more to fibro than pain (well, there is for me) Fibromyalgia usually doesn’t affect your joints, it’s the tissue around the muscles and joints that hurts rather than the joints themselves. I want the fatigue, body tremors, anxiety, being nauseated, dry eye, burning tongue, IBS, muscle spasms, hot flashes, itching, dizziness, headaches, stomachaches, hangover, flu, and running a 10K feeling to go away. Eliminating food didn’t help any of that. 🙁

I think you need to look at what the definition is for fibromyalgia then go from there.

noun
a chronic disorder characterized by widespread musculoskeletal pain, fatigue, and tenderness in localized areas.

continuous muscle pain , tiredness and sensitive areas of the body are the key defining symptoms. You would then have to look at the sub set of symptoms. Fibromyalgia is a also a diagnosis of exclusion. Meaning only diagnosed when everything else is ruled out.

It is not to say that other things and fibro do not feed on each other.. as they definitely do. Just it will be a process for you to work out all the kinks and ins and outs.

Listen to your body , and write down what you are feeling, sensation, pain levels, etc. As much information that you can give a doctor. Helps them help you figure it out. I made a chart and followed it for three months. Ticking off what I needed to. I gave to my doctor as many do I felt I was going nowhere. With it was able to point out key areas of repetitive complaints and feelings I was having. It help my doctor and me define and come to the best conclusions for me.

We are our own best advocates. Hugs Shine bright... not sure if I answered yer question. smiles but there ya go what came out the brain this am. Have a good day.

thats how i was diagnosed was by several fm tests i even had a small nerve biopsy on my leg with cookie cutter type tool that took out a small deep chunk of tissue then the top rhumatologist dr john case from stroger hospital diagnosed 04- 01-11 me with fibro i was going though some older paper work and found the diagnosis paper work just this week it took me 5yrs to get diagnosed and i still do not have it under complete control does anyone i can feel when a flare is going to start there are triggers 1 stress 2 weather 3 doing to much and not getting enough rest if i can just get some good sleep it helps god bless and have a blessed day love brother fibroman

I agree. That is a really good question. Some doctors attribute all or most my symptoms to fibromyalgia which I know is not true for me. Then there are doctors who think I'm imagining symptoms. I know my body much better than the doctors. I have had fibro for so long that I don't know life without it. Every time a new symptom rears its ugly head my primary sends me to a specialist who has no answers or gives me a useless prescription.

I've learned to research everything and listen to my body. I have found personally that many of us here share similar health issues such as thyroid disease, TMJ pain, scalp problems, digestive disorders, depression, sleep deprivation...the list goes on and on.

I know there are reasons for the symptoms, and I pray for all of us as we struggle to understand fibro and live the best life possible.

God bless 💜💜🙏🙏
Judy

@A MyFibroTeam Member

I'm sad for all the suffering you have endured. None of this is easy especially with so many comorbid conditions. I have refused many other medications as well. When my mom was diagnosed lupus had attacked every organ except her kidneys after months in the hospital. They knew very little back then. They called it a blood disease at first. My mother tried Plaquenil but it affected her eyes so she had to stop it. She didn't have any further Plaquenil symptoms when she stopped it. But her body couldn't fight the lupus. My mom lived to be 78 years old. She lived on Prednisone, pain killers, Fosamax, and Ambien. She couldn't speak for many years because she had a paralyzed vocal cord. She never complained because she had a gentle, accepting spirit. She survived breast cancer. She took care of my diabetic father giving him 4 to 5 peritoneal dialysis treatments a day plus 20 medications so he could survive. She did all of this and more in all her silent sufferring. She died with a crucifix in her hand. She held it so tight that she broke off the arm of Jesus.

So many meds have side effects. I research and then weigh my options. I take Fosamax for osteoporosis now after fighting with myself over side effects. My spine is bad. I think of my mom's loss of bone from years of Prednisone. One of her ribs actually disappeared. So I take the Fosamax and the Calcitrial because I have hyperparathroidism and my calcium isn't going into my bones. I have to take Prednisone to survive because I have no longer have adrenal function.

I didn't want to go on like this. I'm sorry. Life is hard for us. We have to survive and find the joy in life. I pray for healing for you as well as wisdom and knowledge for what is best for your body.
Doctors can be fools. We have to be wiser than them.
All my faith, trust, and hope is in Jesus. He sustains me and guides me.

God bless you and keep you close Penelope. 💜💜🙏🙏
Love, Judy

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