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A MyFibroTeam Member asked a question 💭
Limerick, PA

What kind of medical tests did you have done to get your Fibromyalga diagnosis?

December 8, 2019
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Answer Summary

Members shared their varied paths to a fibromyalgia diagnosis, with most describing a process of elimination where doctors used blood work,... Read more

Members shared their varied paths to a fibromyalgia diagnosis, with most describing a process of elimination where doctors used blood work, x-rays, nerve studies, and brain scans to rule out conditions like MS, lupus, and rheumatoid arthritis before confirming fibromyalgia through the tender point test. Several members mentioned additional diagnostic steps their doctors used, including reflex checks, heel-to-toe walking tests to assess balance and coordination, and looking for characteristic symptoms like fibro fog, widespread pain, and extreme fatigue. A recurring theme was the frustration of navigating a diagnosis based primarily on symptoms rather than definitive tests, the challenge of finding doctors who believe and understand the condition, and the reality that fibromyalgia often coexists with other autoimmune or chronic conditions that emerge over time.

A MyFibroTeam Member

Have the Dr. check your reflexes. Fibro people have very reactive reflexes.Try walking a straight line, toe and heal. You probably can't do it. There is some new testing with brain scans that show a problem. Fibromyalgia is crazy since everyone is different. Almost all of us struggle with fatigue, weakness, pain through out our body and most of the trigger spots on the body. Fibro fog hits and you can't remember names of coman items, and then know what they're called a few minutes later. It's more of symptoms that point to having this condition. Since it's causes your nerves to be on guard without rest, it involves your whole nervous system. Everyone usually rules out other conditions and then it ends up with a fibromyalgia diagnosis. The horrible part is trying to find a Dr. that believes you and willing to find what medication that can make your life tolerable. Good luck with your journey.

December 8, 2019
A MyFibroTeam Member

I saw a rheumatologist as well. Had all the tender points. I’ve developed lots of other things since then though

December 10, 2019
A MyFibroTeam Member

The doctor I went to at the time did no medical tests. She asked me where I hurt, I showed her and she said that it was fibromyalgia. Makes me wonder sometimes if I really did have it. I know I do but I think mine isn't as painful as some of you others on the site.

December 10, 2019
A MyFibroTeam Member

I saw a neurologist and he ordered an EEG and a Nerve Conduction Study to rule out other neurological problems such as MS. I saw a Rheumatologist and he did lots of blood work which showed that I had high inflammation markers. They also noted that I had a positive Antinuclear antibodies (ANA) test result. The ANA test is one of the primary tests for helping to diagnose a suspected autoimmune disorder. They ruled out Lupus and Rheumatoid Arthritis. However, they diagnosed me with an autoimmune disease called Undifferentiated Connective Tissue Disease. Later, they did a blood test due to consistent dry eyes and dry mouth and it showed that I had Sjogren's syndrome.

December 8, 2019
A MyFibroTeam Member

Dr ruled out some things, checked reflexes, toe heel thing and then tender points. I have all of them.

December 8, 2019

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