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Now I Have ALS Or What?
A MyFibroTeam Member asked a question 💭

im just so tired of this, i dont really know if this is fibro related or something else
Since 2016 ive been dealing with weird symptoms (morning joint paint, random twitching, muscle pain, tinnitus, vision issues, brain fog, etc) back then all test came clean, MRI, Blood work etc.

But this 2019, i had new symptoms to add in my list lol... headaches, new issues with vision, IBS, some sorta of POTS, etc)

Right now its been 3 weeks since the muscle twitching got worse, and i have it in places i… read more

posted October 13, 2019
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A MyFibroTeam Member

Have you been properly tested for POTS? It sounds like you need to find a new doctor. I was on the doctor merry go round for a long time. I’ve been to several rheumatologists, a neurologist, an endocrinologist, 3 gastro’s, 2 chiropractors, holistic and functional doctors. Don’t trust one doctors opinion, you have to be your own advocate because most doctors don’t care.

posted October 14, 2019
A MyFibroTeam Member

Sounds like FM to me, given your symptoms. Men DO get it. There are many men here. Your doctor is clearly uninformed. Keep pushing and ask for a referral to a Rheumatologist or pain clinic. 🤗

posted October 13, 2019
A MyFibroTeam Member

@A MyFibroTeam Member, it’s not always all fibro. You have to keep up with new symptoms especially if they are serious. Lupus, Fibro, POTS, Hashimoto all have a lot of the same symptoms but the treatments are different. I have lupus, Sjogrens, autoimmune thyroiditis, adrenal disorder, Raynaud’s, I’m sure I missed some. So it’s not good for someone that has several symptoms to always just say it’s fibro and ignore it.

posted October 17, 2019
A MyFibroTeam Member

Men are diagnosed all the time with Fibro. You might get a new Dr! Yikes

posted October 13, 2019
A MyFibroTeam Member

Yes i know what your talking about. I have everything you mentioned. It’s got worse since the Autumn started and weeks of heavy rain. I don’t know what to suggest as i’ve been like this for years.

posted October 13, 2019

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