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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Was Just Put On Naltrexone, What Are Peoples Opinions On It? I Welcome All.

I Was Just Put On Naltrexone, What Are Peoples Opinions On It? I Welcome All.

posted almost 3 years ago
A MyFibroTeam Member said:

@A MyFibroTeam Member ... hello, it caused my joints to hurt and i was at 2.0 mg or less per day. Glad I'm not the only person to report increased pain. May I ask what dose you were on? Thx

@A MyFibroTeam Member ... I agree with your previous posts as your info correlates with my doctors and pharmacists prescribing guidelines. I never heard high doses except for addiction so it's highly irregular to the point of alarming that she said her rheumatologist prescribed high doses for fibro. She was very adamant that her doctor had done it properly but I hope she took your advice and obtained a second consultation somewhere else. I think your info and advice was excellent.

edited, originally posted over 2 years ago
A MyFibroTeam Member said:

@A MyFibroTeam Member, I had a bad reaction to it also. I think my doctor started me on too high of a dose. It was 2.5mg, a lot of people start as low as 1mg and slowly increase it until they find their “sweet” spot. I’m still surprised that the OP’s doctor started her on 50mg, that's the dose they use for people with opioid and alcohol abuse.

posted over 2 years ago
A MyFibroTeam Member said:

I tried it but I must admit I did react pretty bad to this. It actually increased my pain & fibromyalgia very quickly indeed. I had to stop taking it straight away.

But, it’s always good to try things, it’s a very frustrating process but it’s finding ones that works for you & this can take time.
Not good when you need relief fast. X

posted over 2 years ago
A MyFibroTeam Member said:

@A MyFibroTeam Member It's a rheumatologist that gave me the medication. I'm going to talk to them at my next appointment. I mean I don't feel anything weird or wrong now that I'm on it, no weird side effects but I guess I should ask if they are sure they want me on such a high dose.

posted almost 3 years ago
A MyFibroTeam Member said:

The dose of Naltrexone you are on is used for drug or alcohol dependence. I’ve never heard of anyone on that high of a dose for fibromyalgia. For use in treating fibromyalgia or chronic fatigue syndrome, naltrexone is generally given in doses of 4.5 mg or less. Typically, you'll start at 1.5 mg, work up to 3 mg, then increase to 4.5. Some people don’t do well at 4.5, they try different doses until they find what the call their “sweet spot”
The effects attributed to this low dosage are not seen at higher doses. Please research LDN, there are Facebook support groups for LDN. I’m still surprised a doctor put you on that dose. What specialty doctor gave you that?

posted almost 3 years ago
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