You are not alone. Unless someone experiences, it's hard for them to understand. There are days, like today, where I feel like I am dying and just want to cry. No one around me (bf, sons, sister, etc.) can comprehend the magnitude and randomness of the pain, why I hurt when touched, how walking can be impossible. Here...on this app...people understand.

Its a very difficult illness to explain. The severity and impact on our lives is huge and yet for most people nothing shows, so maybe it doesn’t really exist! It’s not given much airtime in the medical arena and yet so many people on this site are disabled by it and can’t even work anymore. It’s a gift to talk with others who have it and know that there are others walking this same road

All the time...I also find people are selective listeners..waiting to interrupt.
I always say its like having the worst flu imaginable...that's flares to highest threshold.
It's so hard I know..and its also exhausting having to work through the same explanations.
I live alone...and I appreciate that I dont have added stress of having to consider others.
Keep in touch and let me know your ok x

I get that often to. I get told I am full of excuses. I use my illness as a crutch and that all I need are vitamins, more exercise, and better way of thinking. It can get frustrating.

I truly understand, but I try to educate others as much as possible. I experience the stiffness and severe pain in my hands. It can be unbearable even after taking pain meds. Hang in there. You are not alone. Praying always.