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A MyFibroTeam Member asked a question 💭
Melbourne, AU

I am just wondering if anyone can please let me know what they do to try and get rid of their extreme fatigue that comes with their Fibro? I have tried so many different supplements and they are not really working and unfortunately at the moment I am in way too much pain to exercise, especially from also recovering from a recent Hernia Repair operation.

June 12, 2019
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Answer Summary

Members shared various strategies for managing the extreme fatigue that comes with fibromyalgia, with many emphasizing the importance of rest... Read more

Members shared various strategies for managing the extreme fatigue that comes with fibromyalgia, with many emphasizing the importance of rest without guilt, gentle movement like walking in warm pools, and listening to your body's limits rather than pushing through. Several members found relief through dietary changes such as increasing protein intake to 80-100 grams daily, taking high-dose prescription vitamin D, avoiding fried foods, and ensuring quality sleep with medications like Lyrica or Neurontin. A recurring theme was the value of relaxation techniques including guided meditation, progressive muscle relaxation, and controlled breathing available on YouTube, with members acknowledging that fatigue often requires simply resting and riding it out, especially when complicated by conditions like chronic fatigue syndrome or recent surgery.

A MyFibroTeam Member

We process protein at a higher rate than healthy people do. Try eating or drinking some protein every 2 hours, 80-100 grams daily.

June 12, 2019
A MyFibroTeam Member

My doctor presecribes me a high dose Vitamin D that i take once a month. It has helped a lot with the fatigue, i wish i could take it more frequently (i have energy for 2 weeks after taking it).

June 15, 2019
A MyFibroTeam Member

I dealt with Fatigue by ensuring I get a good night's sleep. This means I must take Lyrica & Neurontin each evening before bed.

June 13, 2019
A MyFibroTeam Member

I have no magic answer, I just plop in bed and ride it out. For me pushing myself past good sense just made it last longer.
You might consider the fact that you might also have chronic fatigue syndrome. 70% of the people with fibromyalgia also have CFS.
I know I have both because exercise activates a flare with extra additional pain. However fibromyalgia alone benefits from exercise.
Everytime I try and start a physical theapy program I end up crying mid session because of unbeatable pain. I mean baby stuff, and mild stretching.
For me finding a warm pool to walk in is manageable.

June 14, 2019
A MyFibroTeam Member

Nothing has worked for my fatigue, but least I found something which helps with my pain and stiffness. I tried sleeping tablets to get a good night sleep, but has terrible side effects and vomiting/diarrhea so no trying them again.

June 19, 2019

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