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A MyFibroTeam Member asked a question 💭
Atlanta, GA

Has anyone been to a rheumatologist for your fibro? If so, how did it go? Did they take you seriously?

June 12, 2019
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Answer Summary

Members shared mixed experiences with rheumatologists for fibromyalgia diagnosis and treatment, with some finding compassionate doctors who... Read more

Members shared mixed experiences with rheumatologists for fibromyalgia diagnosis and treatment, with some finding compassionate doctors who took their symptoms seriously and helped secure pain relief or ruled out other conditions, while others felt dismissed or were discharged immediately after diagnosis. Several members described how their rheumatologists acknowledged that medical understanding of fibromyalgia remains limited, with one doctor candidly explaining that many fibro medications act more like placebos and diagnosis often relies on ruling out conditions like lupus or MS rather than established testing protocols. A recurring theme was the importance of persistence in finding the right specialist, as experiences ranged dramatically from doctors who refused to document tender points for disability to those who provided ongoing support and advocacy with primary care physicians.

A MyFibroTeam Member

The rhumy I saw 30 years ago was nasty to me (didn't believe in fibro) so I ended up being diagnosed by my GP. I sent a letter to the rhumy with the diagnosis and a link to the Mayo Clinic page on fibro with a suggestion he learn a bit about it.

June 23, 2019
A MyFibroTeam Member

My doc sent me to one 20 years ago for a diagnosis when she suspected it. He confirmed it and put me on Ultram. I got off at because it didn't help. Haven't really found anything thing that helps except that acetaminophen does some good for my arthritis. I took NSAIDS 4 years but it didn't do much good, just gave me GERD. Lyrica was great for awhile, but too many side effects. Took Savella for a year, but stopped because it didn't do much. Sorry I don't have any positive news for you, but a rhumitologist might help you. Everyone is different.

June 13, 2019
A MyFibroTeam Member

I'm searching for a new one. Mine was thorough and did an extensive search making sure all I have wrong is fibro, but he refused to document my tender points for disability. Like all Drs some are great and some aren't. You just have to find the right one!

June 13, 2019
A MyFibroTeam Member

I think that's true. Drs really don't know what to do for fibro and I personally got no help from any pain meds or nerve meds. My biggest problem with my rheumatologist is that I also have arthritis and he hasn't done much with that. Not sure he's really even tried to diagnose it. I have requested a referral to a different rheumatologist.

June 12, 2019
A MyFibroTeam Member

I just changed my rhumatologist he was great he actually said they know very little about fibro they need to do more to help ppl who suffer from it he said something very shocking he said most drugs given for fibro acts as a placebo they really do nothing and he said the testing of the different points for pain they dont go by that so much anymore its ruling out all the other things duch as lupus ms etc and if you have pson they cant explain then they say you have fibro i just found what he said surprising and interesting what do other ppl feel about what was said like your opinion

June 12, 2019

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