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A MyFibroTeam Member asked a question 💭
CLACTON-ON-SEA

Does anyone here care for someone. I have an autistic son and I just wondered how some people coped with having fatigue and pain whilst being in demand.
I hope this makes sense.
Thanks x

May 21, 2019
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Answer Summary

Members who care for loved ones with autism, disabilities, or chronic illnesses shared how they manage fibromyalgia pain and fatigue while... Read more

Members who care for loved ones with autism, disabilities, or chronic illnesses shared how they manage fibromyalgia pain and fatigue while being constantly in demand, with the overwhelming consensus being that they push through because they have to, often as sole caregivers or breadwinners. Several members described taking care of autistic children, aging parents, or partners with serious health conditions, emphasizing the importance of rest whenever possible, taking 'me time' to manage caregiver stress, and recognizing that caring for others sometimes provides the motivation to keep moving despite debilitating symptoms. A recurring theme was the profound emotional and physical toll of grief and ongoing stress, with one member noting that losing a child to cancer made fibromyalgia pain significantly worse, met with deep empathy and recognition from the community that they are true warriors.

A MyFibroTeam Member

Yep, I have 2 ASD/ADHD children. Between extra support needed with school, therapy appointments amd daily behaviour interventions, it sure is exhausting!

May 25, 2019
A MyFibroTeam Member

Your post makes perfect sense! I care for my 91 year old mother who lives with me. I also babysit my 18 month old grandson. The only day I do both at the same time is Thursdays, so Fridays are always bad days, but I love them both so much and will endure it for their sake. Or maybe I do it for my sake. Sometimes I don't think I'd get off the couch if it weren't for them.

May 21, 2019
A MyFibroTeam Member

I can SO relate to you hon--my husband has diabetes and can barely walk. I'm the only breadwinner so I can't AFFORD to have fibro--but I do so I keep putting one foot in front of the other. The stress of being a caregiver is what's hardest on me--so definitely take 'me' time.

May 22, 2019
A MyFibroTeam Member
May 21, 2019
A MyFibroTeam Member

So do I. High functioning autism and developmental delay mild mental retardation early and said bipolar. Although he can get in Services since year but he’s also a twin and she isn’t in the same boat as him you’re a typical with certain other emotional issues I would think. I’m barely ever on here anymore and I’m always too tired to even actually type it hit buttons.

May 21, 2019

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