Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Rogers, AR

My brain feels like it rattles in my head when I walk. Every step, it feels like my brain shifts or something. It's like dizzy but different. Does anyone have any weird head feelings like this?

March 7, 2019
 · 
Reactions

Answer Summary

Members validated the experience of feeling like their brain rattles or shifts with each step, describing similar sensations of... Read more

Members validated the experience of feeling like their brain rattles or shifts with each step, describing similar sensations of lightheadedness, dizziness, and feeling off-balance that can last for days or months at a time. Several members shared potential triggers and contexts, including medication changes (particularly metformin withdrawal leading to POTS symptoms), menopause, brain injuries, and early fibromyalgia flares, with some finding temporary relief through increased hydration and others noting the symptoms eventually subsided on their own. A recurring theme was the relief of discovering they weren't alone in this bizarre and difficult-to-describe sensation, especially after feeling dismissed or unheard by medical professionals despite normal CT and MRI results.

A MyFibroTeam Member

There are times when I wake up and know right off the bat it's going to be a brain swirling day. I actually feel as if the brain is looser in my cranium. I am off balance, light headed, dizzy - sort of slow motion fall into things. It's crazy! It goes away eventually - usually the next day is good. Not my blood sugar - I've checked. Not sure what this crazy condition is doing to us.

March 9, 2019
A MyFibroTeam Member

Yes I thought I was only 1 you've just helped me thought it was in my head as no 1 was listening to me thanks

March 8, 2019
A MyFibroTeam Member

No. Actually I tried metformin for 3 1/2 weeks in December. It did some weird things to ke, so I stopped. Well, the next day I had POTS symptoms for the first time. Lasted a couple weeks. Then my digestion went crazy and all the neurological fibromyalgia symptoms came back after a year and a half but way more than before. It has been 2 months of misery. I wish I had never touched metformin.

March 7, 2019
A MyFibroTeam Member

I use to get that a lot early on in my fibro journey. I would feel dizzy all the time and at work looking at the computer screen would make it worse. It eventually went away. But it lasted months.

March 7, 2019
A MyFibroTeam Member

Me too. Cold. Even in Florida.

March 7, 2019

Related Questions

View All
A MyFibroTeam Member asked a question 💭
"Timbuktu", Michigan

A MyFibroTeam Member asked a question 💭
"Timbuktu", Michigan