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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
London, UK

I was first diagnosed with fibro in 2006 following on from a 2 year period of Polymyalgia Rheumatica. Since being diagnosed, I have had my medication constantly under review due to the fluctuating nature of the pains and immobility difficulties. The pain can be totally unbearable on days, and I cannot function at all. On other days I am able to cope reasonably well and can work through the pains. However, I have been attending my doctor surgery recently with loss of memory, and the tests I… read more

March 2, 2019
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Answer Summary

Members overwhelmingly confirmed that memory loss is a common experience with fibromyalgia, often referred to as "fibro fog," and agreed it... Read more

Members overwhelmingly confirmed that memory loss is a common experience with fibromyalgia, often referred to as "fibro fog," and agreed it can stem from both the condition itself and medications like amitriptyline. Several members shared personal stories of severe cognitive effects, including forgetting words mid-sentence, losing spelling and grammar skills, and developing speech difficulties, with some noticing improvement after discontinuing certain medications. A recurring theme was the frustration of navigating these invisible symptoms while seeking answers from medical teams and the relief of finding validation from others who truly understand the experience.

A MyFibroTeam Member

Yes. I think it's from a combination of pain and medications. Both can cause memory problems.

March 3, 2019
A MyFibroTeam Member

It’s called fibro fog

March 2, 2019
A MyFibroTeam Member

i honestly not on any of that and i have short term memory loss so i i think it is from the fibromyalgia. but i have also read the meds do it to. it could be both.

March 3, 2019
A MyFibroTeam Member

I lost my memory when I was on heavier medications. I also developed a stammer where I knew what I wanted to say, but I couldn't get the words out. It was like my mouth refused to work. I also would lose my train of thought mid sentenance. In addition, I forgot how to spell words and forgot grammar. Mind you, I edited training journals and answered an infoline for an educational organization so writing and talking was something I did all day. After I was forced into retirement, I lost my medical insurance which messed up my medicine and I cold-turkeyed off amitriptyline, Savella, amitiza, Ambien, tizandidine and some others. It was hell, but I lost my stammer!! Slowly my memory improved some be too, but now I think old age plays a part. Spelling never came back, but grammar improved some.

March 3, 2019
A MyFibroTeam Member

Oh my.. I have taken some of the meds you are on. I had terrible memory loss especially with the amitriptyline.. I believe it is the meds. Im so sorry for what you are going through. Have you tried the CBD oil? It has helped me.

March 3, 2019

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