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How do you deal with the loneliness ? I used to interact with 200+ people in my teaching day, now I barely get out of the house. My family is used to supermom, but I’ve crashed and burned and can barely do 1/4 of what I used to do. They haven’t made the adjustment yet either and are inpatient and frustrated with me.
Answer Summary
Members connected deeply over the isolating shift from active, social lives to the limiting reality of fibromyalgia, with many describing the... Read more
@A MyFibroTeam Member
Most people on this website including myself have grieved for the loss of what they used to be.
You get to know who your true friends are when you have Fibromyalgia.
You need to accept that your life has forever changed. As for your Family get some good Books from the bookshop on Fibromyalgia and get your Family to read them.
Afterwards they can ask you questions, maybe then they'll understand what you have been going through.
Hopefully help you out much more.
Blessings Gentle Hugs
💜⭐💜⭐💜⭐💜
Find a friend who understands. Tell your family that you need their help and delegate. Even a little help and understanding goes a long way. I find my cats keep me from feeling lonely and they don't judge my messy house.
Your life sounds a lot like mine. My husband will say he knows that I am in pain and then ask to take out the dog or what's for dinner.
I totally get the super mom thing and thank god my kids are now grown! However, they still don’t get it and instead of understanding and compassion, I usually get made fun of. I know deep down they care but I honestly don’t think anyone that doesn’t have fibro, will ever understand what we go through everyday!! Even my spouse who I’ve been with for 42 years doesn’t get it and he especially pisses me off cause he sees how I am each day and still has no understanding or empathy! I guess if the tables were turned I wouldn’t understand but if I saw someone reduced to tears with pain, I think I’d realize how bad it is and I wouldn’t expect what my family still expects! Oh the loneliness is a whole other story but it is very depressing! I used to be the social queen and now I barely ever go to functions! Let’s just keep our heads held high, if possible physically lol, and try to get through each day one at a time!
The loneliness I find can be quite frightening. I too was around may people while I was working. Right now, I have a morning routine - it can take a bit but I usually manage. I then rest with a good book or I have been journaling. I also spend time investigating new approaches when dealing with fibro.
I am also taking this opportunity to re-acquaint myself with me. I am truly learning how my body works and what I can do about it. When my mind/body says no more, I will have a nap.
Take care
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