Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
February 7, 2019
 · 
Reactions

Answer Summary

Members shared mixed experiences with low-dose naltrexone (LDN) for rheumatoid arthritis and fibromyalgia, with some reporting quick... Read more

Members shared mixed experiences with low-dose naltrexone (LDN) for rheumatoid arthritis and fibromyalgia, with some reporting quick improvements in pain and mood within days while others found it ineffective. Several members emphasized the importance of researching medications independently, advocating for yourself with doctors who may be hesitant to prescribe LDN, and being cautious about side effects from alternative prescriptions like hydroxychloroquine and nortriptyline. A recurring theme was the tension between staying drug-free versus finding relief through medication, with some members highlighting non-drug options like the Quell device and others sharing their reliance on long-term pain management.

A MyFibroTeam Member

My rheum said yesterday that there is a placebo effect the first few days on a med and to give it 2-3 months to see how it really does .

February 13, 2019
A MyFibroTeam Member

Remember to buy a Quell device that wraps under your knee . Fabulous . Developed by Harvard and MIT . Saved me . Drug free . Google it . Wonderful customer service .

February 11, 2019
A MyFibroTeam Member

He probably gets a
Larger kickback from them ! You don’t have to take what your doctor rx . Everyone, please DO YOUR RESEARCH AND BE YOUR OWN ADVOCATE ! Ask him for LDN !

February 11, 2019
A MyFibroTeam Member

I have a friend who started taking this for her Lupus a few years ago and she has had amazing results. Lupus is what they thought I had at first so I asked to be referred to the same rhuemetologist as I figured he would already be familiar with it. But even before he concluded that I probably have fibromyalgia and polymyalgia rhuematica he refused to even consider it, instead putting me on mint-hydrachloroquine which I found out at my last eye appointment could cause blindness and that I may have an eye issue developing already. I tried to stop taking it but that week was horrible. I would like to know what kind of success you have as I would like to try again to get the doc to consider it.

February 10, 2019
A MyFibroTeam Member

It’s the best of the fibro drugs with no or little side effects . I chose to be drug free , but I told my rheum about it after I
Researched and he agreed that it would be his choice for me if I ever were to go on drugs , which i will not . Go for it if you want drugs .

February 7, 2019

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Overland Park, KS

A MyFibroTeam Member asked a question 💭
Brookfield, WI

A MyFibroTeam Member asked a question 💭
Glasgow, UK