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A MyFibroTeam Member asked a question 💭
Brockton, MA

Heat Intolerance affects my life deeply.

I have many issues, but this is the one I dread the most. Because there are instances where I have no control over it.

If I feel overheated, it starts with a sweat on my face, a tingling in my nose, I start feeling dizzy, then I get nauseous, I feel like I have to use the restroom & need to throw up at the same time. It's crazy. Then I faint.

I'm one of these people, that once I'm inside the building where I have to be, coming in the door, I take my… read more

January 4, 2019
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Answer Summary

Members deeply resonated with the original poster's heat intolerance, sharing experiences of excessive sweating (especially on the head and... Read more

Members deeply resonated with the original poster's heat intolerance, sharing experiences of excessive sweating (especially on the head and face), dizziness, nausea, and the constant need for fans and air circulation even in winter. Several members described practical coping strategies including dressing in layers, keeping fans running year-round, avoiding outdoor activities in hot weather, and maintaining cooler home temperatures despite complaints from family members. A recurring theme was the frustration of having this symptom dismissed or unexplained by doctors, with one member noting their fibromyalgia specialist attributed it to the body being stuck in fight-or-flight mode, which impairs the liver and skin's ability to regulate temperature.

A MyFibroTeam Member

I get overheated.easily too. Once i get hot, i cant cool down. My hair gets soaked too. Thats the only place i sweat is my head. I dont know what to do to stop it but you are not alone. Hugs

January 5, 2019
A MyFibroTeam Member

https://www.youtube.com/watch?v=iFetmFua1iQ
watch this guy !

January 6, 2019
A MyFibroTeam Member

I’ve been struggling for years with the heat. I dread summer. My friends laugh at me because my hair is always soaking wet & I constantly have sweat pouring off my face. It’s like a faucet. I never knew it was associated with fibromyalgia. I wish there was more research being done on fibromyalgia. I’ve had it for about 40 years & was always told not to tell anyone. At least now it’s being recognized. I hope we all get some answers soon or a cure!!

January 4, 2019
A MyFibroTeam Member

Yes! I live in Buffalo NY so it’s mostly cool/cold here. In July and August my pain is better BUT I am so intolerant to the heat. It’s unbearable. I always need a fan, even in the winter to circulate air. I can’t tolerate stuffiness either.
When it’s very hot (mid 80s and up) I stay in A/C, don’t go places where I’d have to walk outside without shade, and don’t exert. My biggest summer nightmare is an amusement park when it’s dreadfully hot, all that noise, crowds, flashing lights, ugh.
Make yourself comfortable, no accommodation is too silly. Love and energy to you!

January 5, 2019
A MyFibroTeam Member

Yes I feel this way too. Our thermostats don’t work well. Too hot or too cold.
A friend of mine keeps her home really cold, she has FM.
It drives me crazy that we’re so sensitive to so many things.
He youbeen checked for lupus? People with lupus also have troubles with heat.
But FM does too.

January 5, 2019

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