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A MyFibroTeam Member asked a question 💭
North Miami, FL

I’ve read many post where some of you can’t wait for hotter days. I live in Florida and the humidity really affects me in the worse ways. Our home is extremely cold because I feel comfortable. My friends and family say that I am a penguin. I make sure I have “love blankets” for them, so they don’t suffer. Sometime I don’t feel that it is cold. However, the moment I step outside - the heat and humidity take a toll on my body. I’ve noticed that I feel cold when I am in excruciating pain, the cold… read more

January 3, 2019
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Answer Summary

Members shared deeply personal experiences with temperature sensitivity in fibromyalgia, with the group split between those who struggle more... Read more

Members shared deeply personal experiences with temperature sensitivity in fibromyalgia, with the group split between those who struggle more with heat and humidity versus cold weather, and many noting that both extremes trigger pain and flares. Several members described practical coping strategies, including keeping their homes very cold (despite complaints from visitors), avoiding sun exposure with protective clothing and masks, and recognizing that barometric pressure changes and humidity levels in any season can worsen symptoms. A recurring theme was the frustrating loss of control over body temperature regulation, with many experiencing simultaneous hot and cold sensations, profuse sweating, or shivering, ultimately learning to adapt their environments and routines around these unpredictable shifts.

A MyFibroTeam Member

Unfortunately having no control over your body temperature is a symptom of Fibromyalgia.

I have moments in both winter and summer that I sweat profusely and I can also feel freezing cold as well.

Sometimes I have felt hot and cold at the same time it gets so annoying but there is nothing that can be done about it, you just learn to live with it.

Blessings Gentle Hugs

💜⭐💜⭐💜⭐💜

January 3, 2019
A MyFibroTeam Member

I hope you’re feeling better! I moved to Florida from Indiana because I can’t take the cold. My friends say my home is like living in the fridge lol. But it’s my fridge !

January 7, 2019
A MyFibroTeam Member

@A MyFibroTeam Member my house is the same and wouldn't trade it for another as it's perfect for me as I hate the heat

January 7, 2019
A MyFibroTeam Member

Heat and humidity are a nono for me too. Right now I ;have cold, humidity and wet. so much rain. the humidity is a nono for me either hot or cold. but cold is definitely better for me

January 4, 2019
A MyFibroTeam Member

The heat and humidity are worse that being cool for me. Heat and humidity cause a lot more flares. I do not go out in it any more then I absolutely have to. When I do go out I do not have any skin exposed. I always have to wear a hospital mask, cotton in my ears and wear SUV clothing or I get sunburned through my clothing even through the windows of a vehicle that are tinted. This has gotten worse as the years have passed.

January 4, 2019

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