Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 1, 2019
 · 
Reactions

Answer Summary

Members shared deeply relatable experiences about how chronic pain and fibromyalgia have dramatically reduced their ability and desire to... Read more

Members shared deeply relatable experiences about how chronic pain and fibromyalgia have dramatically reduced their ability and desire to attend social events, with many describing a shift from once being outgoing and social to now rarely leaving home except for necessities like grocery shopping. Several members described specific challenges that make socializing difficult, including sensitivity to noise and crowds, fear of being touched due to skin pain, exhausting fatigue that kicks in around others, anxiety about having panic attacks in public, and the painful flare-ups that follow any attempt to push through and participate. A recurring theme was the profound loneliness and loss of friendships that comes with chronic illness, coupled with frustration that well-meaning advice to 'just be more active' ignores the reality that overexertion leads to days of being bedridden, and gratitude for this online community where members truly understand each other's struggles without judgment.

A MyFibroTeam Member

Yes most definitely. Can’t stand too long, can’t sit too long. I loose my energy fast while around others. My hyper vigilance kicks in. I watch everyone....will they touch me? ( my skin feels bruised most of the time, just a pat or light hug hurts) will I say something wrong? What if....
I rather stay home,but my husband keeps me socializing with the world. If it wasn’t for him I would stay bundled in my blankets.

January 1, 2019
A MyFibroTeam Member

I remember the first long walk i took after along time of not being able to so much of anything. I almost didnt make it back home and nearly cryed when i couldnt get anyone i new to give me a lift back home. I dont think they realized how bad i was and thought silly woman walked to far. Anyway i was out of it for about a week afterwards and learned not to puch myself especially on my bad days cause ill pay for it big time. Listening to your body is a big lesson that i still struggle with because i want to be how i use to be and right now thats not possible. xxo

January 5, 2019
A MyFibroTeam Member

I do this a lot, I always put it down to my depression and anxiety. Now i think about it, when i'm feeling low my pains are worse so the two definitely are correlated

January 2, 2019
A MyFibroTeam Member

p.s i would really love a support group near me would make all the difference in the world.

January 5, 2019
A MyFibroTeam Member

Most definitely 😢. It hurts because people think that you have a chip on your shoulder, & stop inviting you to events. I fear going out, getting sick & not being able to get back home, especially if I push myself to go on a day when I'm not feeling well anyway.

January 4, 2019

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Brisbane, AU

A MyFibroTeam Member asked a question 💭
Fairfax, VA

A MyFibroTeam Member asked a question 💭
Ottawa, ON