Answer Summary
Members shared deeply relatable experiences about how chronic pain and fibromyalgia have dramatically reduced their ability and desire to... Read more
Yes most definitely. Can’t stand too long, can’t sit too long. I loose my energy fast while around others. My hyper vigilance kicks in. I watch everyone....will they touch me? ( my skin feels bruised most of the time, just a pat or light hug hurts) will I say something wrong? What if....
I rather stay home,but my husband keeps me socializing with the world. If it wasn’t for him I would stay bundled in my blankets.
I remember the first long walk i took after along time of not being able to so much of anything. I almost didnt make it back home and nearly cryed when i couldnt get anyone i new to give me a lift back home. I dont think they realized how bad i was and thought silly woman walked to far. Anyway i was out of it for about a week afterwards and learned not to puch myself especially on my bad days cause ill pay for it big time. Listening to your body is a big lesson that i still struggle with because i want to be how i use to be and right now thats not possible. xxo
I do this a lot, I always put it down to my depression and anxiety. Now i think about it, when i'm feeling low my pains are worse so the two definitely are correlated
p.s i would really love a support group near me would make all the difference in the world.
Most definitely 😢. It hurts because people think that you have a chip on your shoulder, & stop inviting you to events. I fear going out, getting sick & not being able to get back home, especially if I push myself to go on a day when I'm not feeling well anyway.