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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Westfield, IN

I’m curious what kind of doctor people see to manage their fibro. Some backstory, after years of trying to figure out what’s wrong with me and going to multiple doctors giving me multiple diagnoses that were totally crap, my primary physician finally admitted it was probably fibromyalgia. Every doctor threw around the possibility, but never persued it. So he tells me he’s not qualified to treat it and refers me to a rheumatologist. 6 months and some bs shenanigans later, I get an appointment… read more

December 18, 2018
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A MyFibroTeam Member

I too see a Pain Management Specialist. I've only seen him a handful of times but I'm remaining hopeful. I found him through my GP who sent me to physio, which they sent me (eventually) to a rheumatologist, who THEN sent me to my pain management specialist (He refers to himself as a coach). And tbh, he's been much more help than anyone else!

December 18, 2018
A MyFibroTeam Member

Yes the pain is real

December 20, 2018
A MyFibroTeam Member

Without sounding at all sexist, I believe that it is much harder for women to be taken seriously about their pain issues. In addition, fibro is usually not the only culprit. One can have fibro along with polymyalgia rheumatica, peripheral neuropathy and migraines.I wonder if someday we will find that there is a relationship among all these differing chronic pain syndromes including, of course, lupus with all of its painful variants. I see a rheumatologist, neurologist, pain management. My PCP just stays informed. Hope that helps. Some days are beyond awful. Others are less so. You have to be aggressive about your treatment, as well as your self-care. Try to be kind to yourself, and not feel guilty about what you cannot do. The pain is real.

December 18, 2018
A MyFibroTeam Member

Rheumatologist is best. It’s a frustrating process..... Beat of luck to you!

December 18, 2018
A MyFibroTeam Member

Goodness. That's the hard part is getting a good doctor. I would get a whole new group of doctors including your family doctor. If it wasn't for my family doctor I wouldn't know what to do. Good luck and stay positive

December 18, 2018

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