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I am going to a neurologist for the first time. Wanting to know if it helps and what kind of tests did the doctor do on you?

January 1, 2017
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Answer Summary

Members shared their varied experiences with neurologists for fibromyalgia and related conditions, describing a range of diagnostic tests... Read more

Members shared their varied experiences with neurologists for fibromyalgia and related conditions, describing a range of diagnostic tests including nerve conduction studies (often described as uncomfortable shocks), MRIs, CT scans, and extensive blood work to rule out conditions like MS, lupus, and Lyme disease. Several members found that neurologists helped coordinate care and identify co-occurring conditions such as sleep apnea, migraines, and spinal issues, though many ultimately received their fibromyalgia diagnosis from a rheumatologist rather than a neurologist. A recurring theme was the importance of being prepared with written lists of symptoms, advocating firmly for oneself when faced with dismissive doctors, and recognizing that finding the right specialist often requires persistence and sometimes seeking second opinions.

A MyFibroTeam Member

The Rheumatologist was helpful. She said Fibromyalgia is a neurological disease. I think Fibro is a catch all, when the doctor doesn't really know what it is.

January 1, 2017
A MyFibroTeam Member

Sorry that all you ladies have to go through all that pain too! I went to a Neurologist first, sent by my primary, but he did not diagnose me with anything and put me on seizure meds and Gabapentin. I went to him, because I was getting migraine, cluster, tension and sinus headaches. He sent me for an MRI, but he didn't find anything, so I wasn't happy with his treatment. He then shifted me over to a nurse practitioner. I was very disappointed. I then went to another one that also had a Phychiatry background, but to my disappointment, he was sarcastic, treated me like it was all in my head and sent me of with some depression and anxiety meds. He also raised his voice at me and I told him that my hearing is not good, then he started to yell loud! I told him that he didn't have to yell, that I had trouble understanding the muffled words, but that I wasn't deaf! He didn't like my answer, so I believe that he was pist off! I will never go back to him! Anyway, my pain management doctor reffered me to a Rheumatoid Arthritis doctor. By the blood test that she has done on me, she thinks that I may have Lupus or something else, besides my Fibromyalgia. I can tolerate the cortisone shots, because they are too painful, so she has been treating me with B-12 shots and Gabapentin for pain and muscle spasms to my feet. I have constant and horrible pain on my shoulders, elbows, upper arms, both knees, pain on both hands, fingers and joint due to my carpel tunnel and Siatica on both hips. Never a dull moment!

January 14, 2017
A MyFibroTeam Member

Mine helped a ton with my fibro. Nerve testing, mri, neuro-psychological testing for memory loss. Helped me find lowest dosage needed to keep pain away. She also sent me for my sleep apnea testing.

January 14, 2017
A MyFibroTeam Member

Only thing a Neurologist did for me was to diagnose me with Spinal AO nothing to do with Fibro what so ever. The Fibro was diagnosed by a Rheumatologist

January 12, 2017
A MyFibroTeam Member

I'll be seeing my neuro soon, for her to do a sleep apnea test ! I have a very good neuro Doctor! I will be posting on my page as to what has been going on with me the past few months!

January 17, 2017

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