The more I read and research Fibro and the pain associated with it, the more I think I have been dealing with this pain most of my life. I remember getting sharp shooting pain n my arms, hands and legs, but being told those are growing pain or everyone feels that some times. Being in such a fog I would go to school on a Sunday, or go to a place of work I left years previously. So I am curious, now that you know what… read more
I was just thinking about this the other day. I look back at childhood and I've had some symptoms appear here and there over the years. Reynaurds once or twice, unexplained ent pain, unexplained tingling in calf and foot, ears hurt in the cold, dizzyness, a sunburn feeling with no burn. It's like I had these glimpses into fibro my whole teenage years but it disappeared for 6 years of pregnancy then came back way worse than ever before
I believe my Fibromyalgia resulted from an extremely stressful childhood which caused my nerves to remain in a heightened state (for my entire life). Looking back.... throughout my teens whenever I rode my bike or exercised, I had more all-over pain than one would normally have. Then into my 20's it didn't seem to be as painful. I believe it was still (dormant/underlying) until a significant stressor in my life caused it to fully surface and Stay and that was around 2005. It took 5 yrs of seeing different Dr's (either not knowing or just not believing in FMS ) before finally finding out that in order to get the official diagnosis I would need to see a Rheumatologist which I did in 2010, after ruling out other diseases etc... I was diagnosed with FMS. Stress does kill people. It just isn't always apparent until it's too late to have prevented the damage.
Imagine waking up every day with the flu. You wake with pain, nausea, dizziness, and weakness every day for years. These symptoms are accompanied by extreme fatigue, sore spots on your arms, legs, chest, and back, chronic irritation of the mucosa tissue of the mouth, nose, bronchial tubes, vagina, and rectum, temperature intolerance, hot sweats, cold sweats, bladder spasms, painful urination, irritable bowel syndrome, weird rashes, slow growing hair and brittle nails, chronic pelvic pain, headaches, TMJ, endocrine imbalance, liver dysfunction, heart palpitations, eye dryness and irritations, salt craving, abnormal tastes, restless leg syndrome, sound and light sensitivity and insomnia(St Amand,1999). These are just the tip of the ice burg.1
The bladder spasms increase the incidence of cystitis. The chronic pelvic pain promotes menstrual cramps, infertility, and vulvodynia. Then there is the memory loss, fibrofog, anxiety, panic attacks, mood swings, depression, loss of self, loss of freedom, and loss of independence. You are left with fear of everything. You can no longer trust your body and because you are so misunderstood, you can no longer trust anyone else.2sk
ye01/all[poetry The Blessing of Fibromyalgia
I've had fibro for 61 years looking back to childhood. I used to sleep in bathtub with hot water to relieve pain so could go to school next day.
I had a very stressful childhood too. Many family issues. As a child I experienced irritable bowel, chronic constipation and always had trouble getting up in the morning. I think the stress led up to me acquiring epstein-barr , then chronic fatigue and fibromyalgia.
My mom had me on dristrin cold med I was about 12 I always had a cold or today might hAvd been chronic fatigue fybro that was 48 years ago after my dad passed in Dec 1989 I was on neo citron was fatigued but now I hear that gusefenien a decongestant is in some books for healing I went cold turkey off of neo citron and then i really increased symptoms
Mmmmm one never knows
Such a misunderstood chronic illness
Everyday is a day closer of finding out how to help us all