Hi Dshai, I'm so sorry to hear you're not being understood, which I know only adds to your stress and then pain. I was diagnosed 16 years ago and have had many illness and operations on top. It's a real struggle when family and friends look at you and think you're now back to 'normal'. The way I describe my pain is I ask them if they've ever had severe sunburn and how it would feel to rub it with a rough towel x 10 and have that on the inside. Plus the exhaustion and fatigue of having not slept for 36 hours running a marathon. Not everyone will get it, but your husband really needs to above all else. It took my husband years, now he does I can cope with the strange looks from others. I do hope you find the peace of mind you deserve. Don't give up, but don't push yourself to a flare up. Good luck xx

I always show people this picture
It's the only thing that has made people aware of how horrible the pain is everyday
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I tell people that it feels like having the flu all the time. Also it’s like someone has a voodoo doll and forgets to take the pin out sometimes...

Hi. I’m sorry you are going through this. I suggest you bring your husband to the doctors with you. Tell your Doctor that you want them to explain to your husband how your condition effects you. That this is not going away. Explain that this will effect you mentally and physically. That every day is different. I also suggest that you share with your husband that you care. That you love him and you understand that this is hard on him. That you realize that you are not the same girl he married years before. Let him know you will do everything you can to try be that girl again. You’ll follow doctors suggestions from the Doctors. Exercise, eat the right foods when you can. If you have a window of feeling better take advantage. You will put him at the top at that time and show him love. If he still doesn’t get it see a Therapist for Marital Councilor. One who’s experienced with this condition. Thankfully, I was diagnosed a few months ago. My husband is a Therapist. He actually helps couples and people who suffer with Pain and Fybro. He has helped me to deal with my guilt of not being the loving wife all the time. He understands. I hope I was being helpful. This is hard for all of us. Even our partners.

Chronic, random, nerve pain..good luck 💜