Does anyone here have Ehlers Danlos Syndrome? I am presently being worked up for a connective tissue disorder, with this disorder being the primary concern.
Yes, I have the hypermobility type which I understand is the only type there is no test for. So, I have extremely tight muscles but very loose joints/ligaments. Makes treatment more of a challenge.
I am also getting worked up for connective tissue disorder and muscular myopathies. I dont have this that I know of. Hope you turn out alright and that ur doctors are kind to you!