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A MyFibroTeam Member asked a question 💭
Marietta, GA

I'm feeling so exhausted! I have yet another appointment with the neurologist tomorrow. I am sure she thinks I have lost my mind but I am sure many of you on this site can agree that FMS is a hard diagnosis to accept because A.) doctors don't really like to tell you that you have it until EVERYTHING under the sun has been ruled out, B.) A lot of doctors don't really treat it so if they don't treat it, then they don't care to learn about it and C.) As we've all heard SO MANY times before, FMS… read more

November 5, 2018
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Answer Summary

Members deeply connected over the question of whether complex regional pain syndrome and fibromyalgia can coexist, with many sharing that... Read more

Members deeply connected over the question of whether complex regional pain syndrome and fibromyalgia can coexist, with many sharing that one-sided symptoms, neurological sensations, and arm weakness are common experiences that often leave them feeling confused and dismissed by doctors. Several members offered practical strategies for managing symptoms, including specific anti-inflammatory supplements (like turmeric, magnesium, alpha lipoic acid, and probiotics), maintaining consistent sleep and eating schedules to reduce flares, and recognizing conditions like costochondritis and small fiber neuropathy that frequently accompany fibromyalgia. A recurring theme was the frustration of being passed between specialists who refuse to treat a neurological condition, the exhausting process of ruling out every other possibility before receiving a fibromyalgia diagnosis, and the profound relief of knowing others experience the same confusing, one-sided, and traveling symptoms.

A MyFibroTeam Member

@ Amy1Splawn, @ Emyem This is the supplements I take. I order from puritans pride which is much cheaper than most places. L glutamine powder. Alpha lipoic acid 200 mg, oil of oregano 1500mg, turmeric/curcumin 450 mg, odorless garlic 1000mg, potassium glutamate 595 mg magnesium 500 mg, calcium, vitamin d, co-q- 10 100 mg, b complex and acidophilus 3 billion live cultures at manufacture. The last one is a probiotic which is very important for us to keep the Candida under control. I know its a lot so maybe Google each one of them to decide which ones to start with. Most are anti inflammatories. Let me know if anyone has anymore questions about them.

November 5, 2018
A MyFibroTeam Member

@A MyFibroTeam Member. The pain in your lungs is probably costochondritis. Its an inflammation of the chest wall. Its very painful and it makes it hard to breathe. I went to the er twice before they diagnosed me. I have woke up for 30 years wishing could say "I feel good" unfortunately it hasn't happened. It really stinks having fibro but you will learn to live with it eventually. Sorry to be a downer. I have found that if I stay on a good sleep and eating schedule then I don't get flares as much or as bad. I get up at 4 or 5 am from pain so I have to take a nap at 2 pm everyday which also stinks but it seems to help me not get so bad. I have been on pain meds for many years and still have pain but at least I can function most days. Without them I would be bedridden. I take a list of supplements too that are mainly anti-inflammatory if your interested. My cousin told me what to take years ago and within about 6 months I was able to function more than I had in years. She is a nutritionist. There is no cure but you can make it more bearable. Let me know if you want the list of supplements I take.

November 5, 2018
A MyFibroTeam Member

You are not alone. I am in the same boat. When I think about the many symptoms I’ve had, I have had one sided pain for a long time. My left side was the worse. My shoulder all the way to my feet hurt. Felt bruised, sore and fatigued. Now it’s my right side. My fibromyalgia symptoms all started with shoulder pain and fatigue and over the last couple of years it has hurt everywhere and everything. I am a hypochondriac and I fear all the time that it’s something more. But everything comes out ok for the exception of a few lab tests, but nothing major so far. I see a neurologist next week for the first time and will have nerve studies done next month. One thing that I have done is changes my attitude about my situation. I tell myself you are alive today, stop worrying about dying, tomorrow is not promised. You can die from something completely unrelated. We are on God’s time. Focus on feeling well, enjoy your kids, appreciate the little things, and trust that God has the answers and either way we will be ok.

November 5, 2018
A MyFibroTeam Member

Almost sound like chostrochondritis which is very common in fibro.

November 5, 2018
A MyFibroTeam Member

Thanks for the replies! Latelly my arm has been falling asleep at night! Lovely

February 6, 2019

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