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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 19, 2018
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Members openly discussed navigating intimacy with chronic illness, with many sharing that while sex can be physically draining, the emotional... Read more

Members openly discussed navigating intimacy with chronic illness, with many sharing that while sex can be physically draining, the emotional closeness and connection with a caring partner often makes it worthwhile and even healing. Several members offered practical strategies including planning intimate time like a date, taking pain medication beforehand, communicating openly about limitations, starting slow, and finding alternative ways to maintain physical connection like extra hugs and kisses when traditional intimacy feels too difficult. A recurring theme was the importance of patience, honest communication with partners about pain and energy limits, and giving yourself grace when your body cannot do what it once could, while still prioritizing emotional connection and physical touch in whatever form feels manageable.

A MyFibroTeam Member

This is a huge problem in our house cause my husband of 36 years is always willing and able and I could care a less!! It hurts and there are so many other reasons but I do give in of course and try to keep him happy! For the first five or so hellish years of this journey, I told him honestly to go find a better partner cause I was useless. He stayed so I guess that says something and I do try to keep him happy but sometimes it’s just so hard! Again, everyone is different so we need to just do what works for us!! Good luck!

October 20, 2018
A MyFibroTeam Member

@A MyFibroTeam Member
It is a great way to get exhausted if you have to get exhausted. ;)
You may as well have some enjoyment getting exhausted. It may even put a smile on your face.

October 19, 2018
A MyFibroTeam Member

Well...my boyfriend is going through a rough time with his back and for awhile we both felt so bad we went from thinking, flirting everyday to an afterthought of how long has it been now? LOL But it's caught back up with us because we miss the intimacy. We also miss all the snuggling we used to do... neither of us can stay in one spot long enough to enjoy the snuggling anymore. While it might be much less than our usual, we still find ways like extra hugs and kisses, etc. - just no more watch a movie and snuggle. Anyway, we are making a more conscious effort to flirt in person/text again... sex spontaneous sometimes but mostly we plan and have a date! He takes an extra pain pill and tells me don't worry, when you get tired, I'll do all the work! And then we make jokes about how fast/short the time frame is compared to before LOL... but we feel closer again... and it's getting more frequent!

Grab a caring supportive partner, start slow and go for it. It's more than worth it with the right person. We are much happier despite any negative after effects of our conditions and I think more often we feel better overall the next few days because of all the positives!

October 19, 2018
A MyFibroTeam Member

Aw linda sorry to hear that! U should defo have sex again its good for the body and the soul. Freinds with benefits are good but ur right not much love or intamacy there. Just take ur time and find someone u have a spark with and maybe when u feel comfortable explain the fibro. Iv not had to go through the whole telling a new partner but im sure if the right guy comes along hel understand and b supportive and if u find someone whos not then dnt sleep with them cos theyr not worth it!! Hope u get ur jollys soon! Gentle hugs xxx

October 19, 2018
A MyFibroTeam Member

Would be nice if my body could keep up with it with my husband unfortunately it costs me the day or so of activity when we do enjoy ourselves.

October 19, 2018

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