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A MyFibroTeam Member asked a question 💭

Does anyone know how you know if you have both.? I have widespread pain including joints and what Rheumy thinks is IBD. Just started Methotrexate. I try to push through chronic fatigue for my boys and for work but finding it increasingly hard with weekends spent in bed and crawling downstairs. I’m slim but finding it too painful to exercise. I used to run and do daily yoga but even that leaves so much pain despite Lyrica. Also very sensitive to noise and light. That seems to hurt too. Hugs to… read more

September 30, 2018
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Answer Summary

Members rallied around someone navigating a possible lupus and fibromyalgia diagnosis, sharing that having one autoimmune condition often... Read more

Members rallied around someone navigating a possible lupus and fibromyalgia diagnosis, sharing that having one autoimmune condition often opens the door to others like thyroid disorders, Sjögren's syndrome, and mixed connective tissue disease, with several describing their own overlapping diagnoses. Many members offered practical advice, including taking folic acid daily with methotrexate to reduce nausea, tracking all symptoms for doctors even if they don't fit neatly into one diagnosis, limiting sugar and processed foods to help manage flares, and recognizing that treatment for lupus often addresses fibromyalgia symptoms as well. A recurring theme was the frustration of complex, overlapping conditions that don't always have clear answers, balanced with encouragement to keep advocating for symptom relief and to rest without guilt when the body demands it.

A MyFibroTeam Member

When you have one autoimmune disease, there is overwhelming chance that you have others. Thyroid, Hashimoto, Sjogren's Syndrome, Fibro and Lupus; then there is Autoimmune Encephalopathy. Get your antibodies tested along with your thyroid after viewing "Stop the Thyroid Madness". Be well, Be blessed

October 3, 2018
A MyFibroTeam Member

I do not have both. There is not one test available for lupus but blood testing is generally dond and like this article states it generally overlaps with fibromyalgia, rheumatoid arthritis etc.

https://www.kaleidoscopefightinglupus.org/diagn...

Please keep us updated on a diagnosis. I have fibromyalgia and recently think I have some neurological disorder as well. Fibro is so frustrating.

September 30, 2018
A MyFibroTeam Member

There’s blood work for them to know if u have lupus. If I’m not sure my rheumatologist told me it’s something u wld find in ur early 30s but if u don’t go to dr no one will know until ur in the pains and need the help. I dnt think it’s a normal testing a primary does. If ur rheumatologist did blood work I’m sure that was one they did. But idk. I’d ask.

September 30, 2018
A MyFibroTeam Member

Yes, and lyrica

October 2, 2018
A MyFibroTeam Member

My doctor thinks that’s a possibility too @A MyFibroTeam Member hope you are not suffering too much. Have you been on methotrexate? Xxx

October 2, 2018

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