Epsom salt baths, acupuncture, massage, and heating pads are all soothing and provide short term relief. I am now learning about neuroplasticity - training the brain to respond less to pain signals by regular meditation and listening with headphones to theta waves, etc. I eliminated gluten and dairy from my diet along with most sugars and take several supplements, including Omega 3 oil, B and D vitamins and CoQ10. Also, I take low dose naltrexone. I go to an "integrative medicine" practice (run by a holistic M.D.) and attend chronic pain classes taught by the doc and a psychologist... it helps to be in a group of fellow sufferers and hear about how much our attitudes matter.

I was referred to a holistic Dr. on my first visit I told her my story. She sat there and nodded her head. When I was done, she said this is what I am going to order. All but one lab I had had done previously. The ONE lab she ordered, that had
Not been done before and only her clinic could run, came back elevated. I had an answer. I had a treatment plan. Approx 3 weeks later my symptoms were resolved...after 25+yrs.
The treatment = DIET‼️
I have followed the Chronic Yeast Overgrowth Diet for 18 months and my symptoms remain in remission (as long as I do not cheat, and then they are subtle)

I am on 4.5 mg, having worked up slowly from 1.5. I haven't had any noticeable side effects and I do feel better, although I am taking Lyrica, too, so I can't say LDN by itself is solely responsible for pain relief.

It is a compound medication, which means a special pharmacy has to buy or mix the powder and put it into capsules - you could easily empty the capsule into food or liquid, although I'm sure the pharmacist could advise you about alternatives. My insurance does not cover it, and I pay around $40 a month for it. It does have to be taken in the evening to be effective, by the way.

Hi Rosylyn! Welcome! I go the water route as much as possible. I swim when I am able and if I can't swim because my neck and shoulders are to painful I walk in the water and work with the special weights they have for water use. I love me a hot tub and am saving for my own...it will be a while. I also spend on massage. If I go every couple of weeks for long enough I can tolerate deeper tissue and then I can exercise more. The more I move the more I can move. Even a little helps. Then there are essential oils for muscle relief and headache relief in the bath, a curated combo of rosemary, maritime pine, sea buckthorn and sea fennel in a carrier of almond oil. I drink flaxseed oil for the omega 3, 1 Tbs of the good stuff, in the refrigerator of the health food store. The list does go on. No scents for any cleaning stuff except a little essential oil maybe...no scents for massage oils...otherwise when i go to use an essential oil as a curative my system is too overwhelmed. And the migraines make me a crazy sensitive anyway. Do yours?

Hi and welcome @A MyFibroTeam Member. I never got on well with physio therapy, hydro therapy or acupuncture, but massage (especially deep tissue as I'm often so tense) helps me greatly and can keep me looser so I don't cause myself so much pain from tension, with an oil I make from Coconut oil, frankincense, myrrh, and cannabis oil, it relieves my aches, pains, spasms and skin sensitivity, from minimal to sometimes no pain at all, especially combined with my edible/oral medicine. I'm hypersensitive to cold, but thrive in the heat, so in the colder seasons I go to a sauna and steam room a couple of times a week. I also have an infrared medisana heat lamp that helps my circulation, defrosts me if I'm feeling cold inside (my bones sometimes feel like ice and it is so painful like bones are being crushed).
I see a structural therapist (like a very advanced chiropractor) twice a year and he makes sure I'm aligned correctly (I'm a wheelchair user and do a lot of sitting) as I have a habit of putting things out of place and then compensating with other muscles that in turn cause more pain, strain, spasms and muscle fatigue.
That is all I can think of at the moment, I hope that gives you some ideas :)

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