Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Stockport, UK

HELP

My legs are driving me insane, have done on and off for years but I'm now 2 weeks without any peace and honestly feel like chopping my legs off.

I've tried tonic water did nothing
I've got soap under my sheet on my bed as was told that can help
Currently got legs on a pillow hoping

Any more ideas

Thanks x

August 18, 2018
 · 
Reactions

Answer Summary

Members shared deep empathy over the maddening experience of restless legs, with many describing the same desperation and sleepless nights... Read more

Members shared deep empathy over the maddening experience of restless legs, with many describing the same desperation and sleepless nights that make them feel like chopping their legs off. Several members recommended practical remedies including magnesium supplements (particularly magnesium malate or oil spray), L-Tyrosine for low dopamine levels, iron supplements like Spatone liquid iron, Hyland's restless leg pills from Walmart, prescription medications like pramipexole, ropinerole, or tramadol, and medical marijuana or CBD oil for those in areas where it's legal. A recurring theme was the importance of seeing a doctor for proper treatment rather than suffering alone, with many members emphasizing that movement, cold floors, Epsom salt baths, and addressing underlying deficiencies in iron, magnesium, or potassium can all play a role in finding relief.

A MyFibroTeam Member

I ended up on a prescription drug for restless leg and restless body symptoms. When you do karate kicks, bicycle kicks,and even your arms slap your husband, it was time to see a neurologist. I am on ropinerole 3x a day and it really helps. I even felt my digestive track jerking inside of me.
The medicine works for the restless pain and movement but not nessarily for the fibromyalgia or osteoarthritis. Obviously, if you aren’t jerking all night then it reduces stress. So there are other brnefits

August 19, 2018
A MyFibroTeam Member

In my experience resting too much is just as bad as over exercising, was in Dublin yesterday and the back of both my knees felt like rocks, worst pain I've been in in my entire 6 years, I walked to slow and funny that people laughed at me, felt totally degrading but after a few hours of walking (had to bring the gf to a hospital up there) the pain went and cleared it up, not saying you have to do hours of walking I was forced but it really helped! Hope you find an answer soon.

August 18, 2018
A MyFibroTeam Member

Do you take magnesium? It helps the restless legs and muscle cramping. It may take a few days to build up, but it has helped me a lot. I take 500 mg at bedtime.

August 18, 2018
A MyFibroTeam Member

I said it before but hylands supplement for restless legs works great. They sell it at Wal-Mart or Walgreens for about $7. It is all natural too.

August 28, 2018
A MyFibroTeam Member

I have tried neurontin for RLS and had alot of breakthrough RLS. My sleep specialist switched me to tramadol for combination pain and RLS, treatment. I also have restless arm syndrome.....I take tramadol 25mg in the morning, and 50 mg at night. I have zero breakthrough with my restless legs and arms. Best of luck to you my friend.

August 21, 2018

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Johannesburg, ZA

A MyFibroTeam Member asked a question 💭
Woking, UK

A MyFibroTeam Member asked a question 💭
Plymouth, UK