I need a stretching type class because I'm so bad at doing things to help my situation at home. My thigh muscles are much tighter than any others and it causes my knee caps to pull up. I have trouble with lounges and various other positions but when I stretch it helps.

Like many of you, I feel like I am just thrown into the "fibromyalgia dumpster" by the conventional doctors I've seen. Same old story: They ask for some tests, can't see anything major, label you with fibro (or CFS) and prescribe medicine to repress the symptoms. No idea about the root cause, no satisfactory information about what actually is going on in the body. Obviously, fibromyalgia is a very complex and varying condition, and I respect the doctors and their knowledge, but can't ignore my… read more

For people who haven't heard of the Lightning Process, it's basically a 3-day neuro-physiological training programme based on self-coaching. It's kind of controversial with both good and bad things about it online. What they claim is that, sufferers of chronic syndromes like CFS or fibromyalgia are stuck in a nervous system dysregulation, which causes the physical emergency response (flight or fight) that compromise body's systems and create the symptoms. By using neuroplasticity (re-wiring… read more

I began getting a sore neck about three weeks ago it has since become unbearable. I'm not currently on any fibro meds and am really struggling with this. The pain is now causing headaches and anxiety issues. It feels as though my neck is swollen. I have been under a ton of stress so I'm not surprised I'm flaring! It's difficult to turn my head! Has anyone else ever experienced this and what did you do to ease the symptoms?

In the past several months,I have been having mood swings,and very short temper.it seems like I'm quick to anger,and very intolerant of people.that's just not normal for me....is it part of having fibro?

Has anyone said such funny things when fatigue has hit you to family or friends . This one is funny will give you all a giggle my mum asked me what I was having for pudding one Sunday I said oh mum I've brought with me my rice pudding and I'm gonna eat my pants with that I didn't even know what I said until my mum burst out in laughter she says to me kez I hope your not going to eat your pants I goes what I then laughed then said omg mum I was meant to say I'll eat my pears with that haha was a… read more

Does anyone get recurring sore throat? My mouth gets so dry and scratchy and my lymph nodes swell up.

Thanks

This is a private hospital in Hemel Hempstead, that offers treatments for conditions like fibromyalgia, ME/CFS, lyme disease etc. I first heard it from my GP, who told me that they might be helpful but it would be very pricey. After researching on the internet and reading people's experiences, I had the impression that they make patients go through so many tests and then offer long-term treatments that are very expensive. In almost all the stories I read, people with fibromyalgia or cfs symptoms… read more

I’ve had a dozen surgeries and every single time, getting an IV is horrific. Aside from complications (the catheter can’t go in far enough, vein collapses, hematomas, no viable vein to poke, blood clots after removal) I have a high level of pain with the IV. I can feel the catheter in place, i get a “shock” feeling and severe burning when they push fluids or meds and it just plain hurts. I never know if my pain tolerance is just low because of the fibro or what, but I honestly suspect I can just… read more

I’m wondering if it’s just me, but I’m definitely getting worse. Year on year the pain, fatigue and quality of life seems to be getting worse. I know the fatigue is also linked to Rheumatoid Arthritis and low thyroid. But just feel too exhausted to keep fighting it. Does anyone else feel like that or is it just me? Lizzy