I'm interested to know if anyone else here has issues with Interstitial Cystitis, since I've been told by my GP and urologist that it often occurs in people who have Fibro. I have had on-off issues since my early 20s and it would be interesting to know how others manage it.
For me it mainly manifests as OAB and bladder spasms, but I also have some nerve damage that my bladder won't actually empty fully by itself. I self-catheterise 3 times a day to prevent leaks and infections. I've sometimes… read more
Have a look at using organic apple cider vinegar. It helps with all sorts of imbalances.
My chronic UTIs have reduced with regular daily use.
I also suffer from IC my gynourologist fills my bladder with a solution of antiflamitory, a numbing solution and something else I can't remember ( fibro fog) and I hold it for an hr in my bladder. But it helps with the many times to the restroom. Do u have problems going to? I can be in the restroom forever and ik my bladder is full and can't go. Or pass a little. This is another problem added to the list of health problems. I hope u get some relief. I'm still trying to get it to. God bless u
BTW, @A MyFibroTeam Member, how do you cope with the pain when it's bad? Thinking about this again because of a UTI which is giving me a bit of a bladder pain flare-up today. Sometimes I find it hard to deal with the unpreditability - I'll have weeks where it's totally fine and then a few days when it's bad. I do find that it's agony to cath when I have a UTI, but I know I have to do it or I won't empty properly and it just gets worse.
Sorry for the essay!
Thanks for the info about the groups - I think I've had leaflets about Bladder Health UK from Urology but I've never followed it up. I was lucky that my GP did agree to send me for further investigations and all the doctors I've seen at Urology are fab. I have heard that some eventually have bladder removal and I hope I'm never going to get to that point, I have been pretty lucky so far I think. The biggest prob for me is that I do have to catheterise to avoid leaks and UTIs, which does sometimes make the pain a lot worse.
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