In the hopes of pinpointing the onset of a flare up-being new to this and all- what little clues have you learned to spot that warns you a flare up is coming? Whats the longest youve experienced?
Like others here, I can sometimes see s flare coming. I feel like I have some flu symptoms, then I can't sleep. Or I notice my chest is all inflamed and hurting a lot. It spreads to my neck, shoulders, arms and hands. I can also get pain in my back, abdomen and legs (often). I feel hot and cold. My head often hurts and my skin hurts to the touch. My hair hurts. I just shut down the best I can until.it's over otherwise it will just keep on going.
It first strikes me as headache that feels like I have a fever but I never do. I know that sounds weird but it’s hard to describe cause it’s not really a headache.
I start to get hot, it feels as though the heat is radiating from my insides, i start to feel sore in my muscles and joints and fatigued, then a migraine starts. I continue to feel like i have severe heat stroke then i feel sick as well, then thats it im floored. I can sleep solidly for up to 14 hours while burning up radiating heat which actually heats a room. The longest flare was 3 days solid, bedridden and wiped out physically and mentally.
I sometimes get a funny metallic taste. Think pains start in my shoulder and spread from there. I don't deal with dress as well as I would normally. Your right it's good to know others have the same and you don't have something else happening or just going crazy X
We never share your personal information with anyone.