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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Describe The Beginning Of A Flare Up

Describe The Beginning Of A Flare Up

In the hopes of pinpointing the onset of a flare up-being new to this and all- what little clues have you learned to spot that warns you a flare up is coming? Whats the longest youve experienced?

over 4 years ago
A MyFibroTeam Member

Like others here, I can sometimes see s flare coming. I feel like I have some flu symptoms, then I can't sleep. Or I notice my chest is all inflamed and hurting a lot. It spreads to my neck, shoulders, arms and hands. I can also get pain in my back, abdomen and legs (often). I feel hot and cold. My head often hurts and my skin hurts to the touch. My hair hurts. I just shut down the best I can until.it's over otherwise it will just keep on going.

over 4 years ago
A MyFibroTeam Member

It first strikes me as headache that feels like I have a fever but I never do. I know that sounds weird but it’s hard to describe cause it’s not really a headache.

over 4 years ago
A MyFibroTeam Member

I start to get hot, it feels as though the heat is radiating from my insides, i start to feel sore in my muscles and joints and fatigued, then a migraine starts. I continue to feel like i have severe heat stroke then i feel sick as well, then thats it im floored. I can sleep solidly for up to 14 hours while burning up radiating heat which actually heats a room. The longest flare was 3 days solid, bedridden and wiped out physically and mentally.

over 4 years ago
A MyFibroTeam Member

I sometimes get a funny metallic taste. Think pains start in my shoulder and spread from there. I don't deal with dress as well as I would normally. Your right it's good to know others have the same and you don't have something else happening or just going crazy X

over 4 years ago
A MyFibroTeam Member

Oh my just had the worst flare ever😢Back shoulders arm chest. I can tell ones coming when deep pain starts in shoulder blade mid upper back. This one was a dozzie 😢

over 4 years ago

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