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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Sarasota, FL

Do you have sensitivity to tastes, smells, chemicals, smoke, things that never bugged you before but now everything changed? My sister smokes and the smell is so overwhelming now I can't breathe. Food tastes different than it once did, I feel like I can taste the chemicals and pesticides...I know a lot of us suffer from sensory overload with our eyes, lights, sounds, tinnitus, etc. I was just wondering how many of you also have other sensitivities you never did before? Is your skin sensitive… read more

May 16, 2018
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Answer Summary

Members shared deeply relatable experiences about sensory overload with fibromyalgia, describing heightened sensitivities to smells, sounds,... Read more

Members shared deeply relatable experiences about sensory overload with fibromyalgia, describing heightened sensitivities to smells, sounds, textures, tastes, and light that profoundly affect daily life, from cigarette smoke feeling suffocating to fabrics feeling painful against skin. Several members offered practical strategies including switching to soft cotton sheets, using foam earplugs or noise-canceling headphones in crowded spaces, narrowing down personal care products to avoid irritants, shopping online to avoid overwhelming stores, and seeking helpful resources on sites like fibrodaze.com and livingwithfibromyalgia.net. A recurring theme was the surprising and frustrating scope of fibromyalgia symptoms, with many members finding validation and comfort in realizing they weren't alone in these experiences.

A MyFibroTeam Member

https://www.fibrodaze.com/hypersensitivity-fibr...

@A MyFibroTeam Member This article is about sensitivity with fibromyalgia. Hope it helps you. ☺️☺️☺️

May 16, 2018
A MyFibroTeam Member

Thank you @A MyFibroTeam Member. I'm glad those sites helped you like me. @MyFibroTeam users... @PamelaButlerLampley @MyFibroTeam users... & all others Don't remember if I've mentioned this to you before or not. www.livingwithfibromyalgia.net www.fightfibromyalgia.net - foods to avoid with fibromyalgia Hope these sites will help you to understand & deal with fibromyalgia. They are very up to date & useful.

May 17, 2018
A MyFibroTeam Member

Yes I do too, I honestly had not related it to fibromyalgia before, however I now nlknow differently.

Perfumes feel like they choke me, my partner suffers heavy wrath for passing wind, any bad smelling feet get nagged until they are clean. My food tastes have changed so much I find myself unable to eat very much and I am now a fussy eater due to not liking very much anymore. I had no idea a disability could change someone this fundamentally.

My hearing was not bad. I was that person that constantly said “what?” Or “pardon?” Occasionally “excuse me?” And now I have spidey senses! 😳. This can also be a curse, like trying to get off to sleep but hearing everything.

I’ve also become more jumpy, as if the noise is so loud it makes me jump. My partner dosed off on the sofa a few days ago and dropped the tv remote and I jumped out of my skin, might as well have been a gunshot to me for my reaction. Not to mention neighbors that are not particularly loud but I hear them anyway. I’m trying not to let it freak me out but it is becoming harder not to.

My mind is boggled by the sheer volume of symptoms this disability has and just how many I suffer with. I really got the crappy end of that deal.

May 17, 2018
A MyFibroTeam Member

Classy you are one of us. And we get to support each other! You might even have knowledge about something that helps everyone else!

May 17, 2018
A MyFibroTeam Member

Yes! The past few days I’ve been having a bad flare-up, and now everything thats sweet at all tastes like straight corn syrup. Oddly, salty goes the other direction for me. Sometimes everything tastes fine, and other times, I’m dumping salt on all of my food because i cant taste it.

September 13, 2018

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