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A MyFibroTeam Member asked a question 💭
North Bend, OR

I'm at the point I need to use a cane or better yet a walking stick to walk my dog. When shopping must find the shortest routes or use a cart to keep me mobile. Do hit a wall some days where can't make dinner because of too much walking that day. Leg muscles just feels like I have run a marathon and have no use left in them. This all started in a much milder form 8 years ago and was told I had FM around the same time.

May 11, 2018
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Answer Summary

Members shared the deeply relatable struggle of declining mobility with fibromyalgia, describing feelings of exhaustion, burning calf pain,... Read more

Members shared the deeply relatable struggle of declining mobility with fibromyalgia, describing feelings of exhaustion, burning calf pain, and the frustration of needing to rest after just 15 minutes of activity, with many mourning the loss of once-loved activities like walking their dogs or working on their feet. Several members offered practical relief strategies, including using ice packs under the knees and calves combined with heating pads, trying a ketogenic diet to reduce inflammation, and giving themselves permission to rest without guilt or pushing beyond their limits. A recurring theme was the emotional weight of watching their bodies decline, the fear of losing independence, and the conflict between wanting to appear normal for loved ones while quietly enduring profound pain.

A MyFibroTeam Member

Walking, standing, sitting all seems to be shorter and shorter time frames

May 17, 2018
A MyFibroTeam Member

Yes, i had ME for 20 years prior to fibro and had trouble walking then but not as i do now....the pain, the stiffness.....
I had a professional say to me yesterday that movement is necessary and i agree, but it is impossible when, like you say, you cant move anymore..
Something i have found helpful recently is going on a keto diet....really low carbs, (apparently carbs have an inflammatory effect on the system_), its quite a tough diet as we are taught to eat grains etc and avoid fats and keto is the absolute opposite but i watched oodles of youtube stuff on it and lots of people have had all sorts of diseases reversed on it so i think why not try it, maybe it will help....
Will keep you posted....Good luck in finding a way through....
Gentle hug.
X

May 11, 2018
A MyFibroTeam Member

I brought a fitbit 2 years ago to try and get fitter i set it at 10,000 steps a day and was smashing the goal everyday reaching 30,000 even 60,000 steps ome day i was in chronic pain by the end of the day but i felt good and fitter now all i reach is between 1,000 - 5,000 steps a day my legs are so week and feel like they just carnt hold me up

May 16, 2018
A MyFibroTeam Member

Some days yes....... just do what you can, stop when you need to.

May 13, 2018
A MyFibroTeam Member

I used to walk my dog twice a day and I mean long walks and I loved it!! I had to put him down two years ago and want another so bad but I’m afraid my health has deteriorated so much that I won’t be able to walk! It’s a catch twenty-two!! I think if I get into walking again I’ll feel better but I’m so afraid because I’m really not sure if I can walk now! It was my favourite pass time so I get so depressed just thinking of it!!

May 12, 2018

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