I have noticed a progression regarding my pain and fatigue. This past year has been my breaking point where it is too hard to hide this from others and pretend/fake being well. I just can't do it anymore. I have been spending most of my days on the couch or in bed. I am trying to remember that I have to pace myself and not be so tough on myself when I can't do things the way that I used to. I hope that everyone is still able to enjoy and appreciate things in their lives, even if what that is has had to change😊.

It’s so hard having to miss out on those moments, whether it’s a daily walk or bigger ones. My advice would be to try super hard to focus on the things you can do with your daughter, whether it’s a quiet snuggle or sharing a book. When people like us focus on the “can’t” it just adds to the overflowing pile. ❤️

@A MyFibroTeam Member
Have you thought about or looked into getting a Walker. You don't have to use it everyday but just have it in the house to use on your bad days. It will also give you somewhere to sit if you are out and can't find a seat.

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A MyFibro...

Yes I know mine has gotten worse with each year as I've aged. I'm 55 now and my 76 yr old mother gets around better than I do.

I truly understand it’s rubbish and you feel like a fraud. People just don’t understand how we feel thank god for this site xxx