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A MyFibroTeam Member asked a question 💭
Alfreton, UK

Hi All

I have been recently diganosed with fibromyalgia after around 50 visits with pain etc...to my GP over the last 2 years. My GP mentioned to put in a claim for PIP, but after reading up on forums a lot of people get refused this due to assessors not familiar with fibromyalgia?

Can I ask if anyone has or are claiming PIP and advise further or the process of being assessed? Etc...

April 20, 2018
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Answer Summary

Members shared their experiences navigating the Personal Independence Payment (PIP) application process in the UK for fibromyalgia, with many... Read more

Members shared their experiences navigating the Personal Independence Payment (PIP) application process in the UK for fibromyalgia, with many emphasizing that initial rejections are common and encouraging others to persist with appeals and second claims. Several members offered practical guidance, including describing symptoms based on worst-day flare-ups rather than best days, gathering all medical documentation and medication lists, seeking help from local council benefits advisors who can support appeals, and presenting honestly during assessments by dressing as you would on a difficult day and using any necessary aids. A recurring theme was that many successful claims involved multiple conditions alongside fibromyalgia, and that while the system can feel biased or discouraging, persistence and proper documentation often lead to approval.

A MyFibroTeam Member

The thing i think with pip gose to the wrong people, so all these that go on about bad backs etc when there is nothing wrong with them, we go through every day full of pain and people think there are off again this is hurting thats hurting, but no one really wants to know, from what i have read its very hard with what we have to get it. Big huggs to all my team, have a great weekend. Xxxx

April 20, 2018
A MyFibroTeam Member

Personal independence payment, it replaced the disability living allowance. You can apply for if it if you are considered disabled by an illness as long as the illness is recognised. Fibromyalgia is now a recognised disability but they still try to deny it by using flawed questioning.

April 21, 2018
A MyFibroTeam Member

Get help, the local council has benefits advisors who are great and help with every step and will even put in for and attend any appeals you may have. It is the council not the jobcentre advisors and they arent connected in any way. Get your medical history together and photocopy any and all letters appointments etc. A list of any and all medication and dose levels per day. The asessment and application is biased, answer it as if its your worst day ie a flare day, dont offer information on what you can do just what you cant. When you go to your asessment dont go well dressed look as you would on a bad day and use any medical aids you may use. I hope this helps and good luck.

April 20, 2018
A MyFibroTeam Member

Yes I get p I p. Please let me say that when you fill out the form at first they reject it but put in a second claim and you should get it then.my Dr said it is how the system works. Remember to write down your worse day feeling and pain etc. Hope this helps.

April 21, 2018
A MyFibroTeam Member

Yes, also for depression and anxiety.

June 7, 2023

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