Each day I wake up stiff but minimal pain. As day goes on the muscles in my ribs and stomach and lower back all feel like they are pulled. Often feel like the wind was knocked out of me. Legs and feet are more stiff and feet are painful in all the joints. I lay down and it starts to feel better. Then the next day starts all over. On a rough day it’s way more intense. Does anyone else feel pains like this?
Maybe this picture can explain it. This is fibromyalgia.
It sounds very much like fibromyalgia. I don't know how many times I've said that I've had this disease for 24 years. What I seldom admit is that I spent 18 of those years in darkness, losing my hope, and watching my life disappear around me. Did I need to go through that? I don't know. I know I can't get those 18 years back.
What happened to me after 18 years is that God opened a door for me and I decided to walk through. I decided to have a different attitude. There were things I could do for myself. I could have friends. I could have a life. It didn't happen all at once, but it happened, and I feel happier than I ever did. I still have fibromyalgia, and the pain still comes, but the pain isn't defining me anymore.
Fibromyalgia does change your life drastically, but you chose how to respond to this challenge, and when it's overwhelming, reach out and hang on for support like your life depends on it. That's why this site exists. And so many local support groups exist.
Sorry to hear that valerie, its awful, it just seems to be one thing after another, but i know fibro does have about 150 different ailments/symptoms with it, one being ulcerative colitis or chrones or other stomach problems, and it took the doctors ages to diagnose me with both things too, have you tryed cbd oil, its what i use now and you can get it in several forms, i take drops under my tongue and creams or bath soaks. The drops would be better for colitis, i have also became vegan and gluten free, and my rheumatologist has told me these things. I was doing yoga too, but i am too ill and weak at the moment, but once ive recovered from my operation and pancreatitis, i will restart, but i am doing meditation to help me relax and for my anxiety. We have these things wrong with us so the best thing is to find things to help it, keep positive anddont give in, and be thankful for other things, like mine is my 2 wonderful children, who are looking after me at the moment, and my 3 dogs and the roof over my head, take each day has it comes, lots of love and gentle hugs xx
Isn't it amazing that issues we each have, that we assume that "I am the only one" feeling this, and it's just ANOTHER issue, and after a while i hate to even mention it because it seems like there is ALWAYS something bothering me. I hate to mention things to family and friends because I feel like I'm always complaining and I need to put on my big girl panties and just deal with it. But, as I have learned from reading everyone else's posts that this is real, it's not just me, this is what living with fibromyalgia is and how it affects each of us. I want to thank each one of you for sharing your stories. They are all helpful and there is someone else reading your story that can relate to what you are saying. We will never really know how much this site really helps everyone. THANK YOU!!
Yep sounds sadly all too typical.
I have Ulcerative colitis but it took them ages to find it
Fortunately it's reasonably well controlled but my Tummy and bowel gets sore
I have Fibro now and it seems that they semi fix one thing then another rears its head
Took them years to diagnose my Fibro too meantime suffering.