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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Sheerness, UK

Pain- in my knees, hands, upoer abdo, lower abdo, lower back, neck sometimes shoulders. Skin that feels burnt so putting clothes on and having the material brush across the skin causes pain. Sensitive to light- i cant cope with sunshine or bright lights and also driving at night with all the car lights. Tired- to the extent i feel drugged. Always so exhausted no matter if i get a good nights sleep. Sleep issues- i either take forever to sleep or wake up several times. Feeling confused about what… read more

April 7, 2018
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Answer Summary

Members strongly validated someone describing symptoms including widespread pain, burning skin sensitivity, light sensitivity, exhaustion,... Read more

Members strongly validated someone describing symptoms including widespread pain, burning skin sensitivity, light sensitivity, exhaustion, sleep disruption, and confusion, with the overwhelming consensus being that these symptoms align closely with fibromyalgia. Several members shared their own journeys to diagnosis, describing years of frustration with doctors who didn't understand or believe them, multiple misdiagnoses, and the emotional relief that finally came with a proper fibromyalgia diagnosis and knowing they weren't imagining their symptoms. A recurring theme was encouragement to advocate persistently with doctors, explore alternatives beyond opioid medications which some found worsened symptoms, and find hope in the shared experience of a community that truly understands what living with fibromyalgia feels like.

A MyFibroTeam Member

Sorry to hear you are having so many issues. Fibromyagia pain is throughout your whole body usually with very tender spots if you push on them....both hip areas, lower back, shoulders, etc There is a distinct pattern. You feel like you have the flu 24/7. Sleep issues are huge. You never feel refreshed when you wake up. Therefore your muscles continually ache. Weight gain and depression commonly occur. If you suspect fibro..find a good doctor to start treating it. Tramado for the pain will help. There are over the counter pain meds along with sleep aids to help you get a good night rest. Massage therapy is another life saver. Hope this helps. Good luck!

April 7, 2018
A MyFibroTeam Member

Yes, it does sound like fibro. It's what I experience.

April 12, 2018
A MyFibroTeam Member

I experience all of this

April 9, 2018
A MyFibroTeam Member

Yes it does sound like fibromyalgia to me.

April 8, 2018
A MyFibroTeam Member

Yep sounds like fibro to me i could of wrote everything you said myself i totally get the feeling of going crazy ive been suffering for a good 6 years if not more and was only diagonosied beginning off this year has my symptoms seem to of worserned massivly and i had a breakdown in the doctors cause they havent been listening to me

April 8, 2018

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