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A MyFibroTeam Member asked a question 💭
Whitley Bay, UK

I am newly diagnosed and alternating between denial and acceptance. I accept it because the more I read the more boxes I seem to tick, symptoms I would never have considered to be fibro. I go into denial because I'm not in constant pain and the pains are mostly mild, any severe pain lasts only a few seconds. I was wondering how other people experience it, what symptoms do you have, how did it start or evolve? Thanks for reading

April 3, 2018
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Answer Summary

Members shared with a newly diagnosed individual how fibromyalgia manifests uniquely for each person, describing symptoms that range from mild... Read more

Members shared with a newly diagnosed individual how fibromyalgia manifests uniquely for each person, describing symptoms that range from mild daily aches and fatigue to severe flare-ups triggered by weather, stress, or overexertion, with many emphasizing that pain levels fluctuate unpredictably from day to day. Several members offered practical coping strategies, including Epsom salt baths, massage, staying hydrated, pacing activities, counseling for acceptance, and connecting with supportive communities like this forum or Chronic Pain Anonymous meetings. A recurring theme was the importance of self-compassion and listening to your body without guilt or blame, as acceptance rather than denial is key to managing fibromyalgia, even though denial is a natural and common stage in the journey.

A MyFibroTeam Member

I can relate. Almost 2 years later and i still go back and forth. My family and friends are there to remind me thst its ok and not my fault of im having a bad season. I do t feel like denial is a bad place to be in at times, but when you start feeling like the pain is because of actions or lack of actions on your part, thats when its not a healthy mindset. Your pain os real, no matter how strong it is. And its not your fault. Dont surrender to it, but dont blame yourself either. :)

April 3, 2018
A MyFibroTeam Member

I am sorry you got the dx. I too was in denial. For two years. Just listen to your body, read up on Fibromyalgia. Try massage, hot Epson salt baths, drink plenty of water and don't beat yourself up if you don't feel good. Listen to your body. This site has really helped me. I only got the dx 2 weeks ago. So, we are in this new journey together.
Stay strong!!!!

April 3, 2018
A MyFibroTeam Member

I started out with symptoms I called “flu thats not a flu” lol. I would get so fatigued, and achy and muscle pains. My temp would go up and I would be wheezy and SOB. Headache, elevated heartrate...but no congestion or runny nose. As far as pain went, I thought everyone had pain all the time. I worked as a nurse so aches and pains came with the job. Then I injured my back 6 years ago. I thought i could work through the pain and fight it. I too went through denial, always thinking it was going to get better.
That was my biggest mistake. My other symptoms and pain only got worse. The fatigue was crippling. The best thing I ever did was counselling to help me accept it and to learn to listen to my body. I try to rest when I have to. Pushing through it for years simply added stress to my body. I have tachycardia, elevated CRP and cortisol levels. I saw a cardiologist who demanded my GP increase my pain medication. Acceptance is key, but denial is a natural stage we all go through.

April 3, 2018
A MyFibroTeam Member

I’m fairly new to all this too. The hardest part for me is accepting the diagnosis. I, like you, am not in excruciating pain every day. I have a daily background hum of pain or achiness with piercing, stabbing short-lived pain. My shoulders and neck are always tender to the touch though. And I’m fatigued in the mornings, afternoons and evenings because I pop awake as though someone has shot me with adrenaline in the middle of the night. I also have been diagnosed with TMJ disorder, hypothyroidism, endometriosis, thoracic outlet syndrome, probable bfs, anxiety and IBS. The symptoms seemed to creep up a little at a time for me and then BAM! Just over two summers ago, I hit a wall. I started experiencing the burning and tingling. My anxiety hit the roof. I thought I had ms. We ruled that out but the anxiety would not subside. By October I was having shooting pains, body wide twitching and high anxiety. I think a life of stress, perfectionism and unrealistic expectations is what really did it for me. But who knows - certainly no doctor or specialist I have ever met. This is a great forum! I think you may get most of your answers here. Welcome! Can I add you to my team?

April 4, 2018
A MyFibroTeam Member

Fibro can flare up in many ways. Some days are better than others. It can go from a little to a lot. Some times I ache so bad I can hardly move. other days I

can be fine. A very strange thing to have.

April 3, 2018

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