Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
jnoe4f@gmail.com

My dr said to me that tjere is no such things as fibro flare up and is testing me for lupus?
Any feed back please

March 27, 2018
 · 
Be the first to react

Answer Summary

Members responded to someone whose doctor dismissed fibromyalgia flare-ups while testing for lupus, with many sharing that it is entirely... Read more

Members responded to someone whose doctor dismissed fibromyalgia flare-ups while testing for lupus, with many sharing that it is entirely possible to have both conditions simultaneously and that fibro flare-ups are very real, often triggered by illness or stress due to a compromised immune system. Several members strongly encouraged finding a new, more informed doctor who recognizes fibromyalgia as a legitimate condition, suggesting practical steps like calling offices to ask about their experience with fibro before committing to a provider and requesting specialized blood tests like an ANA panel to distinguish lupus from fibromyalgia. A recurring theme was frustration with doctors who still dismiss or minimize fibromyalgia despite extensive medical evidence, paired with fierce encouragement to advocate for oneself and seek compassionate, knowledgeable care.

A MyFibroTeam Member

ANA panel which looks for antibodies present can identify Lupus or similar diseases which can mimic fibromyalgia symptoms, but are degenerative, unlike Fibromyalgia.

March 27, 2018
A MyFibroTeam Member

Hi there.
I have sle lupus and fibro..so it's hard for me to tell when one starts and the other one ends. There is specialized testing to find out if you have lupus (blood draw).

March 27, 2018
A MyFibroTeam Member

Call the new doctor's offices your insurance covers and ask to get a statement on the doctor's experience with fibro and position on the official medically recognised health condition to screen out bad doctors before setting any new doctors as a permanent one. Pick a female if that makes you more comfortible. Be confident and stand up for yourself. 🌹👍🌹

March 28, 2018
A MyFibroTeam Member

there is very definitely such a thing as fibro flareups! and they can cause u a lot of problems and pain - very often but not exclusively it can be triggered by another illness entirely because we have a compromised immune system we dont get rid of it quickly then it triggers the fibro again and aggravates it, i got a massive flareup after i recently had the flu for five weeks. unfortunately a lot of docs dont even recognise how serious or debilitating fibro can be! have a good look around this site for ideas of how to minimise the effects of such flareups and how to calm them down when they happen maybe?

March 28, 2018
A MyFibroTeam Member

You can have both. I’ve been diagnosed with Fibromyalgia but some of my symptoms match lupus too, my rheumatologist has explained you can have both, and is further testing for either lupus of arthritis.

March 28, 2018

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Pittsburgh, PA

A MyFibroTeam Member asked a question 💭
Atlanta, GA