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A MyFibroTeam Member asked a question 💭
Eugene, OR

How do people cope with this loss??
I feel so isolated at times & long to see new things, go to new places, but thus far, my body feels otherwise..

March 17, 2018
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Answer Summary

Members deeply empathized with the struggle of wanting to travel while living with fibromyalgia, with the overwhelming consensus being to... Read more

Members deeply empathized with the struggle of wanting to travel while living with fibromyalgia, with the overwhelming consensus being to start small, plan carefully, and build confidence through short trips before attempting longer journeys. Several members shared practical strategies that have worked for them, including building in frequent rest breaks, traveling during milder weather, choosing accessible destinations like warm beach resorts or cruise ships, packing all medications in carry-on luggage, and planning backup options when symptoms flare unexpectedly. A recurring theme was refusing to give up on travel despite physical limitations, with many members sharing that getting away from daily routines actually reduces their symptoms, and that even small outings like day trips or overnight stays can provide meaningful boosts to mental health and a sense of accomplishment.

A MyFibroTeam Member

I don't know how long you've had fibromyalgia and have been in pain, but I remember what it was like for me back in the mid nineties when I got my first diagnosis. I didn't know what it was. I had never heard of it. The more I experienced it and found out about it, the more pissed I got. I was so resentful that this happened to me. And I had other problems, too.

I lost so much back then. My career, my fiancee, my friends. And then I started getting migraines probably from the stress which was overwhelming. And I had no support, period. It took me years, but I did rebuild my life.

If I had people, family who had been by my side at this time, perhaps my life would have gotten back on track faster. Most people do have somebody who sticks by them. This is what I'm coming to in terms of your situation. If there are people who love you, it makes a big difference.

Maybe they need to learn about fibromyalgia too. Give them a chance. Also, reach out to them for support. It's not your fault you're sick. Be kinder to yourself. Baby yourself with Epsom salt baths or gentle self massage when you can't sleep. Research supplements and diets that will reduce inflammation in your body. In time you'll learn to manage pain better.

Finally, don't give up travel, but realize that you may have to do it differently from others your age. You may need to go a slower pace, make plans in advance. If it's a big trip, a good travel agent can be of help.

I hope in time that things become easier and less painfful, that you are able to find more positive ways of looking at the future. God is taking care of you. ❤

March 17, 2018
A MyFibroTeam Member

Planning helps, break the journey down with plenty of breaks. Dont try to do too much when you get to your destination as its easy to forget your ill. Thats how i cope now, dont get me wrong i still cant go abroad but im taking it one accomplishment at a time. I hope this helps. Just one thing find a relaxing place to unwind.

March 18, 2018
A MyFibroTeam Member

I just spent a month in South East Asia, visiting Thailand and Vietnam. I had my telltale elbow pain once after cutting banana palms to feed the elephants at the sanctuary I visit.

I have now been home 2 months and have been having quite a tough time from pain.

When I travel I leave all my worries behind. I don’t have to think about anyone other than me. I ensure I have rest time along the way but I also see as much as I can and walk a lot.

If you want to travel give it a try. Do it in a way that you feel safe (with a friend or family member perhaps), factor in some rests and eat well. You might find that, like me, your symptoms subside when you travel.

March 18, 2018
A MyFibroTeam Member

Traveling has been good for me as long as I follow certain precautions. Going to a warm beach resort in the winter is a God send. We have done cruises with alot of daily shore excursions and that can be taxing. I pick and chose what I can do. I love learning about different cultures and have been to Egypt, B bealtic, Italy, etc. My favorite place is Maui but this time the flight coming home was really tough. I won't give up traveling unless I absolutely have to. It also helps get my mind off of things. Maybe an easy weekend might
Be an answer.

March 18, 2018
A MyFibroTeam Member

@A MyFibroTeam Member I travel a lot with my husband. We have a 19 camper van. By sitting high in it, I can go so much farther than being crunched in a car. Also we can stop and take comfortable breaks when necessary. Sometimes it's a nap in the back stretched out. I can travel by train, because I can walk while the train is moving, and cruising is easy. Airplane is out now. Too much crunching down in a small seat. Movement and breaks are critical to me as well as easy access to a bathroom on demand. We try to take as much stress out of travel as possible. Example byways, not highways.

March 18, 2018

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