Connect with others who understand.

sign up log in
About MyFibroTeam
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Go Back To Being Social With Fibromyalgia?

How Do You Go Back To Being Social With Fibromyalgia?

Before my pain started, I was extremely social. I loved meeting people, and going out with friends, but it's so much harder now. Friends have stopped inviting me places, and if I make plans, I'll often have to cancel because I'm having a flare. What do I do to maintain these relationships?

A MyFibroTeam Member said:

Me too. I'm right there with you and I have cried about it a lot. I know my friends are busy and they have their own lives and other friends to hang out with, but the friendship I have with two in particular goes back 35 years and we used to do things together. 😔😔 Well family is important to me and we too have drifted a little, other than holidays and special occasions. So, I decided to start a GIRLS NIGHT at my house once a month. Everyone brings something fun to eat. I have a pool table, ping pong, and lots of games. We had our first one last week and it was really nice. So maybe you could do something like that. I haven't decided yet if I'm going to invite my friends. I think I'll stick with family for now.😊

posted over 2 years ago
A MyFibroTeam Member said:

Tell your friends that you have to be invited the same day around that time. Then you will know if you can go or not. The people who are not inviting you are assuming your too sick to go. I had a simular problem. I put on face book I wanted to go to Bingo it was a week away. I showed the post and tagged some people in it. Should of never done that. I was sick that day and couldn't go and one of them my cousin got mad at me. She said it seemed like I can go with everyone else but her. I told her she is so busy that I can't ask her on the same day. She needs to ask me the day of if I can go. It's just are life now and it's hard to accept but that is the way it goes.

posted over 2 years ago
A MyFibroTeam Member said:

You don’t!!! I’m so tired of making plans and having to cancel and I feel so dumb! I have lost so many friends but the true friends understand and stick with you! It’s very upsetting but there’s nothing we can do. It’s worse if you still go out cause then you have that fake smile on all night and you’re dying with pain inside! Then you’re laid up for a few days!!

posted over 2 years ago
A MyFibroTeam Member said:

I was exactly the same going out all the time. Life and soul of the party. Now I cancel and I miss out on a lot. You probably will not want to hear this but... you will find out who your friends are. I have lost a lot due to the fibro and my divorce. However your true friends will understand. I have friends both male and female who have researched fibro. I don't do social media expect this and LinkIn for work purposes. My friends will screen shot post from people who have it and what works from them. That's true friends.
We cannot help the way we feel, we don't choose this life. Your true friends will shine through.
If you cannot go out organise a girlie night in, ask everyone to bring something, no pressure for you to have to make food. These nights for me are the best. If you are not feeling great wear your PJ's be comfy. There is no pressure to look good, be make up free and stick your hair up. I have been know to tell the girls all to wear PJ's that way you don't feel away. That way you are still in contact with your friends and you are maintaining your relationships.
In fact I have a girlie night planned next week. Doing buckets of wine and PJ's we all take it in turns to host. X x

posted over 2 years ago
A MyFibroTeam Member said:

It is hard work, I dont go out at all, its six nations time and I'm always out at this time unless I was working. I've had to tell 2 of my friends that I cant go out with them, they are gutted for me but fairplay they understand. My friends know if they want to see me they have to come and see me in my home and they do, I've got use to it now, not being able to go out at all. Explain to your friends the situation, and maybe one day when your feeling good with no flare up, you could invite your friends to your home for a girly night in, if they are good friends they would attend. Xx

posted over 2 years ago
Browse more questions and answers
Continue with Facebook
Sign up with your email
Already a Member? Log in