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February 13, 2018
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Members strongly connected over the overwhelming exhaustion that makes speaking and even breathing feel impossibly difficult, sharing how... Read more

Members strongly connected over the overwhelming exhaustion that makes speaking and even breathing feel impossibly difficult, sharing how fatigue can strike suddenly and leave them unable to move or communicate. Several members revealed they frequently sigh without realizing it, coming to understand that these deep breaths serve as a way to work through constant pain and conserve energy, similar to breathing techniques used during childbirth. A recurring theme was the emotional toll of this invisible struggle, with many describing feelings of frustration, tears from sheer exhaustion, and the loneliness of living with symptoms that others often misunderstand or dismiss.

A MyFibroTeam Member

I sigh a lot too. I realized that it is a way to work through the constant pain. If you have had kids, you will remember the childbirth "puffs". Breathing through the pain! Gentle hugs.

February 13, 2018
A MyFibroTeam Member

Yes! My exhaustion drives me to tears. My hubby will inquire what’s going on
when I cry out of nowhere😢. I tell him
that I’m so tired all I can do is cry. I can’t talk as that’s way too exhausting and breathing is exhausting, sort of heavy. I know I’m getting air but I always say I feel like I need some fresh oxygen. I absolutely despise this disease. As I’m getting older it doesn’t hurt any worse it just seems like I
don’t get as many breaks from it as I used to. Still, I am blessed. Love and understanding to all of you.❤️

February 13, 2018
A MyFibroTeam Member

Wow i find myself sighing all the time too.i really dont mean too,i cant seem to stop,But it does make sense though xx

February 14, 2018
A MyFibroTeam Member

Sometimes the thought of socializing with anyone just seems too exhausting. I find myself sighing a lot also.

February 13, 2018
A MyFibroTeam Member

Yep, a friend said that while getting her mail at the end of driveway, had to lay down on the ground because of fatigue; she just couldn't go on.

February 13, 2018

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