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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Calgary, AB

I do not sleep most nights and really need some rest. Betwwen the pain, ressless legs and contant stress I have not slept in days. Any advice would be really helpfull.

February 3, 2018
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Answer Summary

Members shared a wide variety of solutions for managing sleep difficulties caused by pain, restless legs, and stress, with recommendations... Read more

Members shared a wide variety of solutions for managing sleep difficulties caused by pain, restless legs, and stress, with recommendations ranging from prescription medications like hydroxyzine, amitriptyline, gabapentin, and muscle relaxants to natural options such as melatonin, Hyland's restless leg tablets, and iron infusions to address low ferritin levels. Several members found relief through cannabis products including medical chocolates, CBD oil, and smoking pot before bed, while others emphasized the importance of strict sleep hygiene practices like maintaining consistent sleep and wake times, sleeping in complete darkness, avoiding electronics in the bedroom, and limiting evening fluids. A recurring theme was the combination of medical intervention, lifestyle adjustments, and self-advocacy, with many members encouraging the original poster to work closely with their doctor to find the right personalized approach for restorative sleep.

A MyFibroTeam Member

I smoke pot. Its the only time I smoke and can get to sleep

February 4, 2018
A MyFibroTeam Member

Practice practice practice good sleep hygiene.
It took me awhile but when I do these things it really does train my body to sleep better.

Go to sleep each night same time. Do soothing or quiet activity before bed. Sleep in completely black room, not a crack if light. Cover clocks up too! Breathe deep relax belly breathing while drifting off. Calm your mind, only listen to your body breathing. Wake up each day at same time even on weekends.
Don’t have electronics in bedroom either. Don’t drink water after dinner or early evening it will help you not get up at night to go to bathroom because then your brain wakes up! If you wake up ... lie still and remind yourself you waited all day to sleep, feel your mattress and cozy blankets under and around you, think quietly about that as you drift back to sleep. If you can’t get back to sleep get out of bed do quiet boring activity... go read a manual or something you hate reading... it will bore your brain and when you start to get tired go back to bed. Oh this is important try not to nap at all during day!!!!! If you really must do not sleep more than 30 minutes or else you will be entering phase one if your rem sleep stage for sleeping and that is not good to do . Best eishes👍🏻

February 26, 2018
A MyFibroTeam Member

My Restless Leg Syndrome was cured via Iron infusions and that helped so much with restorative sleep. Have your Doc check your Ferritin levels. My Rheum Doc wants my levels around 80 and they were at 17.

February 9, 2018
A MyFibroTeam Member

Ditto on the pot it also helps me with fibro & pain.

February 4, 2018
A MyFibroTeam Member

I use a 1:1 CBD oil and it is helping me to get a bettet sleep most of the time.

February 4, 2018

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