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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does anyone out there who suffers from fibro also have raynauds phenominom as well as erythromelalgia?

A MyFibroTeam Member asked a question 💭
Olympia, WA

Would love to have someone to talk to about it.

November 8, 2017
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Answer Summary

Members connected over the shared experience of having both fibromyalgia and Raynaud's phenomenon, with several confirming they have been... Read more

Members connected over the shared experience of having both fibromyalgia and Raynaud's phenomenon, with several confirming they have been diagnosed with Raynaud's and noting that it now appears on the official fibromyalgia diagnostic questionnaire used by doctors. Many members described persistent coldness in their hands and feet regardless of climate, with one member in Florida experiencing cold extremities even in warm weather, and another sharing that medication prescribed at age 16 never provided relief. A recurring theme was validation and solidarity around these overlapping conditions, with members sharing diagnostic resources and adding each other for continued support.

A MyFibroTeam Member

@A MyFibroTeam Member. I added you to my team. Thanks for posting that fibro questionaire.

November 10, 2017
A MyFibroTeam Member

@A MyFibroTeam Member. I did save that list that you posted but i have not really read it yet. It is very small print so i need to break down and put my reading glassed on to see it. Lol

November 10, 2017
A MyFibroTeam Member

@A MyFibroTeam Member, if you go to my home page I have posted the latest diagnostic sheet that doctors use to help diagnose fibromyalgia. If your doctor is not using it, hand them a copy! Lol! And Raynaud’s is on the list.
xxxx

November 10, 2017
A MyFibroTeam Member

@A MyFibroTeam Member. i just saw that you said they added raynaud to the fibro questionaire. So I guess they consider it a symptom of fibro? That does not surprise me.

November 10, 2017
A MyFibroTeam Member

@A MyFibroTeam Member. I was just saying that I live in florida so there has to be a reason that my feet and hands are cold. I have never been diagnosed with raynauds but i have assumed I have it from the symptoms. Lol. We actually have a fall day today. It is barely 70 degrees. Lol.

November 10, 2017

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