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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Tonasket, WA

Does anyone else have auto immune disorders and if so what is your diagnosis?

October 18, 2017
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Answer Summary

Members shared a wide range of autoimmune diagnoses alongside fibromyalgia, including ankylosing spondylitis, Hashimoto's thyroid disease,... Read more

Members shared a wide range of autoimmune diagnoses alongside fibromyalgia, including ankylosing spondylitis, Hashimoto's thyroid disease, Raynaud's syndrome, Type 1 diabetes, celiac disease, multiple sclerosis, and undifferentiated connective tissue disease. Several members described the challenge of living with multiple overlapping conditions, noting how common it is for people with fibromyalgia to also have confirmed autoimmune disorders. A recurring theme was cautious optimism about ongoing research, including new antiviral treatments and efforts within the medical community to formally classify fibromyalgia as an autoimmune condition.

A MyFibroTeam Member

@A MyFibroTeam Member, I totally and 100% agree with you. Both of my doctors already call this an autoimmune. The doctor at my pain clinic has read some new information that they think this might not even have anything to do with the central nervous system but something else. They have a new drug that’s coming out in the next year or two. It’s an antiviral mixed with Celebrex. New information is coming out all the time. I’m encouraged to know that, and I’m looking forward to learning more and more as it comes. When they finally do classify this as an autoimmune, more money will be put into it and we might finally get more help.
xxxx

October 23, 2017
A MyFibroTeam Member

Celiac and IBS. However, despite the fact that I’m part of the medical community STILL fighting to get fibro recognized as an autoimmune disorder, it still IS an autoimmune disorder in itself, in addition to causing other disorders. When a disorder causes this much havoc and cellular stress, it is by definition an autoimmune disorder because it depresses your immune system as your body’s energy stores are being directed elsewhere and thus react to your own body as an invader. That’s why it’s nearly impossible to find someone with fibro who DOESN’T have an autoimmune disorder attached to it. Fibro mainly through the overwhelming cellular stress causes autoimmune disorders. We’re so close in the medical community to getting this classification applied, and yet still so far.

October 22, 2017
A MyFibroTeam Member

I have Raynaud’s and hypothyroid.
xxxx

October 19, 2017
A MyFibroTeam Member

I have undifferentiated connective tissue disease, which is auto-immune but no definitive disease. My Rheumatologist leans toward Lupus but I think more rheumatoid arthritis due to family history and consistent joint pain. But my blood work is negative for that. I take Plaqunel (spelling) and Arava.

October 19, 2017
A MyFibroTeam Member

I have an underactive thyroid now.

October 21, 2017

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