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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Belgrade, MT

Ok this might be a weird question but I'm still trying to figure out this whole fibro thing and how I'm affected personally. So sometimes my pain comes out of nowhere and other times I will be shopping or cleaning(physical work) and when I go to sit down and relax the pain is intense. Is this common with fibro? I've always thought it was weird.

October 14, 2017
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Answer Summary

Members affirmed that experiencing sudden, intense pain after physical activity or when trying to rest is completely normal with fibromyalgia,... Read more

Members affirmed that experiencing sudden, intense pain after physical activity or when trying to rest is completely normal with fibromyalgia, with many describing the frustrating unpredictability of symptoms that strike at random times and places throughout the body. Several members shared coping strategies including marijuana, meditation, warm water exercise, avoiding long car rides, and learning to modify their lifestyles by pacing activities and giving themselves permission to rest without guilt. A recurring theme was the emotional toll of grieving their former abilities, feeling misunderstood by others who see them as lazy, and struggling with the uncertainty of not knowing how they will feel from one day to the next.

A MyFibroTeam Member

I have the exact same thoughts when I feel ok. When the pain comes I'm no longer in denial. I've been going through this since April of 2013 after a trauma

October 14, 2017
A MyFibroTeam Member

Yes, it does come out of nowhere! I've found Any kind of stress, good or bad, will cause a flare. Also, if you travel, fly instead of taking long car rides. A long car ride will mean a terrible flare for me. Rest, meditation, soft music, warm water exercise help me.

October 16, 2017
A MyFibroTeam Member

It's Fibro. It's weird. So many different symptoms. Effects everyone differently. My started 20+ years ago. Could work all day do anything. Then when I tried to relax pain start. Go to bed can't sleep. Now it is constantly, can't work, can't always sleep.

October 16, 2017
A MyFibroTeam Member

I understand. I too get angry at times
People look at me like I'm lazy
Some days I can do stuff some days I can't. Hard to make plans cuz I don't know how I will feel.

October 15, 2017
A MyFibroTeam Member

Yesterday I got super angry and almost in tears because this isn't who I want to be anymore. It's frustrating that I can still remember how my body used to be and can't have it anymore.

October 15, 2017

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